Attitudes toward participation in a pregnancy and child cohort study.

Paediatric and Perinatal Epidemiology
Julie L DanielsJ M Thorp

Abstract

While epidemiological studies aim for high participation rates, it is becoming increasingly difficult to recruit and retain participants in lengthy observational studies. We surveyed women who recently participated in the Pregnancy, Infection, and Nutrition Study during their pregnancy to learn more about what initially motivated them to participate in the study, their attitudes about the study protocol, and whether they would allow their child to participate in future studies. Most women were motivated by their interest in science and learning about their pregnancy. In general, women felt quite comfortable with most aspects of the study. Consent forms, telephone interviews and self-administered questionnaires were the most acceptable components of the study, but even specimen collection was well tolerated by this cohort. Women were less comfortable with the possibility of their child participating in future research. This survey confirmed that once women are enrolled, they tend to be willing to complete most components of an intensive study, suggesting that initial efforts for recruitment are most important.

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Citations

Aug 9, 2008·BMC Pregnancy and Childbirth·Rebecca L TooherCaroline A Crowther
Oct 15, 2010·The Journal of Clinical Endocrinology and Metabolism·Samantha Meltzer-BrodyJohn Thorp
Mar 22, 2014·European Journal of Obstetrics, Gynecology, and Reproductive Biology·Emily S BarrettUNKNOWN TIDES Study Team
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Aug 20, 2009·Paediatric and Perinatal Epidemiology·Sarah NechutaUNKNOWN Michigan Alliance for the National Children's Study
Jun 3, 2016·Journal of Human Genetics·Midori YamamotoAkira Hata
Jun 18, 2016·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Neeru GargChris J Griffiths
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Aug 18, 2018·BMC Pregnancy and Childbirth·Evelyne MuggliJane Halliday
Jan 27, 2021·Journal of Human Genetics·Midori YamamotoAkira Hata
Aug 10, 2021·Depression and Anxiety·Yasmin V BarriosJohn M Thorp
Aug 15, 2021·Developmental Cognitive Neuroscience·Vidya RajagopalanMoriah E Thomason

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