Autism beyond pediatrics: why bioethicists ought to rethink consent in light of chronicity and genetic identity

Bioethics
Alexandra Perry

Abstract

Autism is a chronic neurodevelopmental disorder that presents unique challenges to bioethicists. In particular, bioethicists ought to reconsider pediatric consent in light of disparity between beliefs that are held about the disorder by parents and adults with autism. The neurodiverse community ought to be given some consideration in this debate, and, as such, there may be a role for autistic narratives in clarifying this problem.

Citations

May 7, 2013·Biosecurity and Bioterrorism : Biodefense Strategy, Practice, and Science·Lainie RutkowDaniel J Barnett
Feb 13, 2016·American Journal of Medical Genetics. Part B, Neuropsychiatric Genetics : the Official Publication of the International Society of Psychiatric Genetics·Kristien HensKris Dierickx
Jan 2, 2016·European Journal of Medical Genetics·Kristien HensKris Dierickx
Sep 17, 2020·Ethics & Human Research·M Ariel CascioEric Racine
Jun 20, 2020·Autism : the International Journal of Research and Practice·M Ariel CascioUNKNOWN the Autism Research Ethics Task Force

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