Behaviour problems of patients with Moebius sequence and parental stress

Journal of Paediatrics and Child Health
W BriegelK Otfried Schwab

Abstract

Moebius sequence is a rare condition usually defined as congenital facial paralysis with congenital impairment of ocular abduction. At present, there is little information on behavioural problems, parental stress and possible relationships between these factors. To fill this gap, this study investigated these aspects relevant for counselling. Parents of 4-17 year old subjects known to the German Möbius syndrome foundation were anonymously asked to fill out several questionnaires, for example, the Child Behavior Checklist (CBCL)4-18. The primary care givers of 41/58 subjects (70.7%) sent back filled-out questionnaires. Ten subjects did not meet the inclusion criteria; 15 males and 16 females (4; 7-17; 0 years, median age: 10; 7 years) were included. Ten out of 31 subjects were rated as clinical on at least one CBCL scale; three had a total problem score in the clinical range. Social problems were the most important problems with rates of 12-17-year old subjects being about five times as high as those of younger subjects. Compared with the general population, but not with other parents of mentally and/or physically handicapped children, the primary care givers experienced higher levels of stress, which were correlated to anxious/...Continue Reading

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Mar 4, 2009·European Child & Adolescent Psychiatry·Wolfgang BriegelK Otfried Schwab

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Citations

Nov 19, 2011·Research in Developmental Disabilities·Wolfgang Briegel
Jan 23, 2018·Special Care in Dentistry : Official Publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric Dentistry·Jefferson da Rocha TenorioKarem López Ortega
Jan 4, 2019·Genes, Brain, and Behavior·Elisa De StefaniPier Francesco Ferrari
Jul 12, 2019·Journal of Neurodevelopmental Disorders·Elisa De StefaniPier Francesco Ferrari
Aug 6, 2020·International Journal of Environmental Research and Public Health·Matthew HottonLouise Dalton

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