Being the next of kin of an adult person with muscular dystrophy

Clinical Nursing Research
Katrin BoströmHelena Sunvisson

Abstract

A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's (N= 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n= 14), parent (18%, n= 7), child (21%, n= 8), sibling (15%, n= 6), and other relative (3%, n= 1). Latent content analysis is employed and involves an interpretation of the interviewtext. The results showthe meaning of being close to a person with muscular dystrophy through the themes that emerged: exposure of the family; the span between obligation and love; being vigilant, protective, and supportive; and striving for an ordinary life. This study reveals a need for healthcare staff to understand the next of kin's narrated meaning of changes when a family member has a progressive disease.

References

Jul 1, 1992·Health Care for Women International·B Downe-Wamboldt
Aug 1, 1991·Foot & Ankle·L A Mitchell, D E Baxter
May 1, 1990·Journal of Advanced Nursing·M R NolanN C Ellis
Nov 1, 1985·Journal of Personality and Social Psychology·J V WoodR R Lichtman
Apr 1, 1971·Social Science & Medicine·C M Parkes
Mar 1, 1995·The British Journal of Social Psychology·K I VanderZeeR Sanderman
Jan 1, 1995·Diseases of the Colon and Rectum·M J KilbrideM Morse
Oct 1, 1996·Journal of Psychosomatic Research·G Ahlström, P O Sjöden
Jul 10, 1999·Social Science & Medicine·M A Sprangers, C E Schwartz
Jul 10, 1999·Social Science & Medicine·F X Gibbons
Aug 24, 1999·Scandinavian Journal of Rehabilitation Medicine·K DahlbomL G Gunnarsson
Jan 5, 2000·Social Science & Medicine·L L NorthouseT George
Jan 11, 2000·Journal of Community Health Nursing·K J FaisonD Frank
Jun 28, 2000·Research in Nursing & Health·K L SchumacherS L Dibble
Dec 29, 2000·Research in Nursing & Health·L Ayres
Jan 5, 2002·Disability and Rehabilitation·B NätterlundG Ahlström
Jun 14, 2002·Neuromuscular Disorders : NMD·Alan E H Emery
Sep 10, 2002·Journal of Nutrition Education and Behavior·Nancy L KondrackiDaniel R Amundson
Nov 27, 2002·The Gerontologist·Neena L Chappell, R Colin Reid
Jun 26, 2003·Palliative Medicine·Martin J HechtBernhard Neundörfer
Oct 28, 2003·Research in Nursing & Health·Carol J FarranOlimpia Paun
Oct 29, 2003·Obstetrical & Gynecological Survey·T LeB Reeder
May 19, 2004·Scandinavian Journal of Caring Sciences·Peter StoltzAnia Willman
May 22, 2004·Journal of Gerontological Nursing·Carol J FarranJulia L Bienias
Mar 4, 2005·Disability and Rehabilitation·Katrin Boström, Gerd Ahlström
May 13, 2005·American Journal of Medical Genetics. Part a·Katrin Boström, Gerd Ahlström
May 19, 2005·International Journal of Rehabilitation Research. Internationale Zeitschrift Für Rehabilitationsforschung. Revue Internationale De Recherches De Réadaptation·Katrin Boström, Gerd Ahlström
Sep 1, 1991·Trends in Endocrinology and Metabolism : TEM·M A Baxter

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Citations

May 1, 2012·European Child & Adolescent Psychiatry·Dominik Sebastian SiehAnne Marie Meijer
Jul 15, 2011·BMC Neurology·Edith H C CupBaziel G M van Engelen
Oct 17, 2008·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Elisabeth LiedströmGerd Ahlström
Jan 7, 2011·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Elisabeth LiedströmGerd Ahlström
Aug 4, 2009·Scandinavian Journal of Caring Sciences·Annette SverkerGunnel Hensing
Sep 12, 2007·Journal of Human Nutrition and Dietetics : the Official Journal of the British Dietetic Association·A SverkerG Hensing
Apr 14, 2015·The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques·Kori A LaDonnaShannon L Venance
Nov 6, 2009·Nursing Ethics·Barbro Wadensten, Gerd Ahlström
Feb 11, 2010·Journal of Family Nursing·Britt-Inger Saveman
Oct 10, 2018·Disability and Rehabilitation·Anna CarlingAnette Forsberg
Apr 4, 2021·International Journal of Environmental Research and Public Health·Alicia Aurora RodríguezNicole Passi

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