Bereaved adults with intellectual disabilities: a combined randomized controlled trial and qualitative study of two community-based interventions

Journal of Intellectual Disability Research : JIDR
S DowlingSheila Hollins

Abstract

Bereaved adults with intellectual disabilities are known to experience prolonged and atypical grief which is often unrecognized. The aim of this project was to find an effective way to improve mental health and behavioural outcomes. Subjects were randomized to two different therapeutic interventions: traditional counselling by volunteer bereavement counsellors, and an integrated intervention delivered by carers which offered bereavement specific support. Qualitative and quantitative methods were used to determine their effectiveness and efficacy. The counselling intervention resulted in measurable gains both clinically and in terms of quality of life; the second intervention proved impracticable in most settings and no improvement in mental health or behaviour resulted. Despite small numbers, the quantitative findings were highly significant, were supported by the qualitative data, and were of practical relevance to primary care practitioners and specialist mental health and intellectual disability staff.

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Citations

Feb 29, 2008·Harvard Review of Psychiatry·Claire Brickell, Kerim Munir
Mar 1, 2012·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Irene Tuffrey-WijneAmanda Cresswell
Jun 30, 2007·Journal of Intellectual Disability Research : JIDR·S Todd
Aug 2, 2011·Journal of Intellectual Disability Research : JIDR·J McEvoyE Tierney
Apr 13, 2013·Journal of Applied Research in Intellectual Disabilities : JARID·Emily Handley, Nick Hutchinson
May 28, 2015·Journal of Applied Research in Intellectual Disabilities : JARID·Jennifer A Gray, Maryann Abendroth
Sep 21, 2013·Research in Developmental Disabilities·Leen Vereenooghe, Peter E Langdon
Jul 4, 2017·Journal of Applied Research in Intellectual Disabilities : JARID·Lynn IrwinSuzanne Guerin
Jul 7, 2017·Journal of Applied Research in Intellectual Disabilities : JARID·Irene Tuffrey-WijneAstrid Wijne
Sep 30, 2015·Palliative Medicine·Amy WallerRob Sanson-Fisher
Jun 19, 2009·Current Opinion in Psychiatry·Philip C Dodd, Suzanne Guerin
Sep 9, 2011·The Cochrane Database of Systematic Reviews·Peter BowerNancy Rowland
Feb 22, 2014·Implementation Science : IS·Antoine BoivinRichard Grol
Apr 12, 2016·The Cochrane Database of Systematic Reviews·Robert BaloghDaniela C Gonçalves-Bradley
Oct 18, 2019·BMJ Supportive & Palliative Care·Katherine HuntStuart Todd

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