Bilateral childhood visual impairment: child and parent concerns

Journal of AAPOS : the Official Publication of the American Association for Pediatric Ophthalmology and Strabismus
Laura LiebermannJonathan M Holmes

Abstract

To identify specific health-related quality of life and visual function concerns affecting children with bilateral visual impairment as expressed by children or one of their parents (proxy) and concerns affecting the parents themselves. A total of 37 children <16 years of age with visual impairment (visual acuity worse than 20/70 in the better eye) and one parent for each child were prospectively enrolled. Semistructured individual interviews were performed with children 5-15 years of age (n = 16) and with one parent for each child (ages 0-15 years, N = 37). Interview transcripts were analyzed using NVivo software. Categories of concern were identified from both child and parent interviews, from which broad themes were identified. The frequencies of the themes and specific categories of concerns were calculated. Regarding the child's experience, categories of concern were grouped into 6 themes: visual function (expressed by 13 of 16 children [81%] and 33 of 37 parents [89%]), treatment (63% and 54%), emotions (50% and 68%), social (50% and 70%), physical discomfort (50% and 22%), and worry (38% and 8%). Concerns expressed regarding the parents' own experience were grouped into 5 themes: worry (100%), compensate-adjust for condi...Continue Reading

References

Sep 15, 2004·American Journal of Ophthalmology·Joost FeliusEileen E Birch
Nov 13, 2008·Archives of Ophthalmology·Sarah R HattJonathan M Holmes
Sep 29, 2009·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Meryl BrodTorsten L Christensen
May 29, 2010·The British Journal of Ophthalmology·Jyoti KhadkaJ Margaret Woodhouse
Jun 1, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Kathryn Eilene LaschKathleen Rosa
Dec 3, 2011·The British Journal of Ophthalmology·Donatella Pascolini, Silvio Paolo Mariotti
Mar 13, 2014·Acta Ophthalmologica·Jody F LeoneUNKNOWN Sydney Childhood Eye Studies
Jun 11, 2014·Child: Care, Health and Development·V TadićUNKNOWN Vision-related Quality of Life (VQoL) group
Apr 15, 2016·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Linda RaineyGerardus Hermanus Maria Bartholomeus van Rens

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Citations

Mar 3, 2019·International Journal of Environmental Research and Public Health·Anna M BujnowskaNigel V Marsh
Mar 28, 2020·JAMA Ophthalmology·Sarah R HattJonathan M Holmes
Jan 18, 2019·American Journal of Ophthalmology·Sarah R HattJonathan M Holmes
Jul 27, 2021·Frontiers in Human Neuroscience·Trudy GoodenoughCathy Williams

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