Blogging as a viable research methodology for young people with arthritis: a qualitative study

Journal of Medical Internet Research
Julie PrescottJanet E McDonagh

Abstract

The development of services that are responsive to the needs of users is a health policy priority. Finding ways of engaging young people in research to gain insights into their particular experiences, perspectives, and needs is vital but challenging. These data are critical to improving services in ways that meet the needs of young people. Our aim was to evaluate Web-based blogging as a viable method for understanding the daily experiences and condition management strategies of young people with juvenile arthritis. To meet the objectives of the study, a qualitative approach was required to gather information on the experiences and perspectives of young people regarding the management of their condition and its daily impact. In collaboration with a group of young people with arthritis, a custom website was developed. This website provided the opportunity for young people (aged 11-19) with arthritis from a United Kingdom pediatric hospital to contribute blogs. It was designed so that young people were free to write about whatever was important to them, but the site also included some structure and prompts to facilitate the writing of blogs. Qualitative analytical procedures were employed, supported by NVivo software. Engagement i...Continue Reading

References

Jan 1, 1980·Medical Care·L M Verbrugge
Nov 28, 2001·The Gerontologist·D B RazianoR Lavizzo-Mourey
May 25, 2002·Psychonomic Bulletin & Review·Martin Corley, Christoph Scheepers
Oct 19, 2002·Journal of Medical Systems·Nicola J GrayPeter R Noyce
Mar 12, 2005·Qualitative Health Research·Cheryl Tatano Beck
Feb 20, 2007·Cyberpsychology & Behavior : the Impact of the Internet, Multimedia and Virtual Reality on Behavior and Society·Neil S Coulson, Rebecca C Knibb
Oct 30, 2008·Journal of Health Communication·Martin Tanis
Apr 29, 2011·Qualitative Health Research·Sally Sargeant, Harriet Gross
Dec 2, 2011·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·Sumaira Malik, Neil S Coulson
Nov 7, 2012·British Journal of Health Psychology·Ellen M HendersonChristopher Eccleston

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Citations

Jun 22, 2016·Cyberpsychology, Behavior and Social Networking·Jason E OwenRobert Hanneman
Oct 21, 2016·Pediatric Rheumatology Online Journal·J E McDonaghN J Gray
Feb 12, 2019·The Diabetes Educator·Samereh AbdoliHeather Stuckey
Jun 20, 2020·Revista gaúcha de enfermagem·Pétala Tuani Candido de Oliveira SalvadorLannuzya Veríssimo E Oliveira

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Software Mentioned

NVivo
Skype

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