Boundary Negotiating Artifacts in Personal Informatics: Patient-Provider Collaboration with Patient-Generated Data

CSCW : Proceedings of the Conference on Computer-Supported Cooperative Work
Chia-Fang ChungSean Munson

Abstract

Patient-generated data is increasingly common in chronic disease care management. Smartphone applications and wearable sensors help patients more easily collect health information. However, current commercial tools often do not effectively support patients and providers in collaboration surrounding these data. This paper examines patient expectations and current collaboration practices around patient-generated data. We survey 211 patients, interview 18 patients, and re-analyze a dataset of 21 provider interviews. We find that collaboration occurs in every stage of self-tracking and that patients and providers create boundary negotiating artifacts to support the collaboration. Building upon current practices with patient-generated data, we use these theories of patient and provider collaboration to analyze misunderstandings and privacy concerns as well as identify opportunities to better support these collaborations. We reflect on the social nature of patient-provider collaboration to suggest future development of the stage-based model of personal informatics and the theory of boundary negotiating artifacts.

Citations

Jul 14, 2020·Proceedings of the ACM on Human-computer Interaction·Jina SuhGary Hsieh
May 19, 2019·JMIR Human Factors·Eun Kyoung ChoeJulie A Kientz
Jul 14, 2020·Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies·Jessica SchroederSean A Munson
May 1, 2019·Healthcare·Alan LevitonTobias Loddenkemper
Oct 17, 2019·International Journal of Environmental Research and Public Health·Frederico M BublitzPlinio P Morita
May 14, 2019·Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies·Chia-Fang ChungSean A Munson
Sep 21, 2018·American Society of Clinical Oncology Educational Book·Ji Youn ShinSung Won Choi
Nov 1, 2019·Proceedings of the ACM on Human-computer Interaction·Ada NgMadhu Reddy
Nov 6, 2020·Journal of the American Medical Informatics Association : JAMIA·Ari H PollackWanda Pratt
Feb 26, 2021·Journal of Medical Internet Research·Mustafa OzkaynakPatrick Klem
Jan 8, 2021·Informatics for Health & Social Care·Nora WeinbergerJoachim Szecsenyi
May 14, 2021·Proceedings of the ACM on Human-computer Interaction·Adrienne PichonNoémie Elhadad

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