BREAKING BAD NEWS IN A NEONATAL INTENSIVE CARE: THE PARENT'S EVALUATION.

Revista paulista de pediatria : orgão oficial da Sociedade de Pediatria de São Paulo
Ligia MarçolaSilvia Maria Macedo de Barbosa

Abstract

To describe the reports of parents of newborns (NB) with congenital malformations hospitalized in a Neonatal Intensive Care Unit (NICU) who received bad news, in order to identify the issues related to the perception of bad news given adequately or inadequately. A cross-sectional study was conducted from January to October 2018, in which parents of newborns with congenital malformations hospitalized in NICUs were interviewed at visiting hours, according to inclusion criteria. The questionnaire had semi-structured questions related to reception of bad news. Analysis of the data was descriptive. 28 mothers and two fathers were interviewed and 16 (53.3%) reported having had at least one bad news in the NICU. Of those, 10 (62.5%) considered appropriate the way in which the news was given. The justifications were: sincerity of the professional, delicacy to give the news, giving hope to the family, use of appropriate words and demonstration of caring about the newborn. Six participants (37.5%) considered inadequate the way of breaking bad news. The reasons were: unpreparedness and lack of knowledge about the child's case, use of difficult language, haste or anxiety and discouragement of family hope. Most of the news was given by a pr...Continue Reading

References

May 15, 2008·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Kathleen L MeertUNKNOWN National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network
Oct 23, 2009·Journal of Perinatology : Official Journal of the California Perinatal Association·S WeissY E Vaucher
Dec 8, 2016·Patient Education and Counseling·Christian EnkeChristiane Woopen
Apr 1, 2016·Investigación Y Educación En Enfermería·Nasly L HernándezAlexander Lovera
Sep 27, 2018·Journal of Applied Genetics·Magdalena M Witt, Katarzyna A Jankowska

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