Bringing personalized medicine to the community through public engagement

Personalized Medicine
Holly Etchegary, Brenda Wilson

Abstract

There is growing expectation that advances in genomics herald the age of personalized medicine. Medicine has always been personal; however, the growing availability of genomic tools and technologies enable more precise risk stratification and disease management than ever before. Notably, a key aspect of the success of personalized medicine is related to public acceptance and engagement. For example, the public must be willing to collect and utilize family history and other genomic information, and individuals must be able to interpret and comprehend the significance of genomic information for their health and well-being. In this article, we review public engagement initiatives with personalized medicine, outline some of the challenges to engaging the public with personalized and genomic medicine and offer suggestions for future engagement initiatives. As genomic advances continue, the need for public input in the development of appropriate institutional practices and public policy about personalized medicine is ever important.

References

Aug 19, 2003·Nature Genetics·Susanne B HagaWylie Burke
Jun 19, 2004·Scandinavian Journal of Public Health·Klaus HoeyerNiels Lynöe
Jun 19, 2007·Community Genetics·Charles RotimiUNKNOWN International HapMap Consortium
Jan 10, 2008·JAMA : the Journal of the American Medical Association·Steven H Woolf
Mar 20, 2008·JAMA : the Journal of the American Medical Association·Maren T ScheunerPaul G Shekelle
Nov 18, 2008·Genetics in Medicine : Official Journal of the American College of Medical Genetics·David KaufmanKathy Hudson
Apr 7, 2009·Genetics in Medicine : Official Journal of the American College of Medical Genetics·David KaufmanJoan Scott
May 15, 2009·Public Health Genomics·S HahnUNKNOWN Genomedical Connection
Nov 26, 2009·Translational Research : the Journal of Laboratory and Clinical Medicine·Jeffrey Laurence
Nov 26, 2009·Translational Research : the Journal of Laboratory and Clinical Medicine·Geoffrey S Ginsburg, Huntington F Willard
Jan 13, 2010·Nature Reviews. Genetics·Alan E GuttmacherKári Stefánsson
Jan 15, 2010·Annual Review of Public Health·Rodolfo ValdezMuin J Khoury
Apr 17, 2010·Public Health Genomics·Kieran C O'Doherty, A Hawkins
Apr 23, 2010·American Journal of Preventive Medicine·Colleen M McBrideThomas W Valente
May 19, 2010·Annual Review of Genomics and Human Genetics·Amy L McGuire, Laura M Beskow
May 21, 2010·Clinical Pharmacology and Therapeutics·M J Khoury
Jun 11, 2010·Public Understanding of Science·Holly Longstaff, Michael M Burgess
Jul 9, 2010·The American Journal of Medicine·Isla M OgilvieGregory Y H Lip
Sep 25, 2010·Health Policy·Amina M Jabbar, Julia Abelson
Oct 30, 2010·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Geneviève DaudelinJean L Denis
Dec 9, 2010·Health & Social Care in the Community·Pamela AttreeJennie Popay
Dec 15, 2010·PLoS Biology·Claire Marris, Nikolas Rose
Jun 11, 2011·Public Understanding of Science·Claudine AndersonRachel Iredale
Jan 14, 2012·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Julianne M O'DanielSusanne B Haga
Jan 21, 2012·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Daryl PullmanCatherine Street
May 1, 2012·Nature Methods·Laura ClarkeUNKNOWN 1000 Genomes Project Consortium
Jun 5, 2012·European Heart Journal·Keyan SalariEuan A Ashley
Jun 27, 2012·The Hastings Center Report·Erika BlacksherJulia Abelson
Jul 28, 2012·Journal of Obstetric, Gynecologic, and Neonatal Nursing : JOGNN·Holly EtchegaryPatrick Parfey
Sep 8, 2012·Genetics in Medicine : Official Journal of the American College of Medical Genetics·David L VeenstraNed Calonge
Jan 1, 2010·Genomics, Society, and Policy·Amy A LemkeSusan Brown Trinidad
Sep 15, 2012·The Hastings Center Report·Eric T JuengstRichard A Settersten
Jan 12, 2013·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Teri A ManolioGeoffrey S Ginsburg
Feb 15, 2013·Genetic Testing and Molecular Biomarkers·Susanne B HagaHuntington F Willard
Mar 2, 2013·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Belen HurleVence L Bonham
Jan 1, 2012·Journal of Personalized Medicine·Robin BurnetteRalph Snyderman
Jan 1, 2013·Journal of Personalized Medicine·Julius Alexander Steffen, Jan Simon Steffen
Mar 1, 2012·Personalized Medicine·Stuart HogarthAlex Faulkner
Mar 1, 2012·Personalized Medicine·Alison Harvey
May 1, 2010·Personalized Medicine·Oksana A MakeevaValery P Puzyrev

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Citations

Jul 1, 2014·Personalized Medicine·Holly Etchegary
Jul 27, 2021·Frontiers in Genetics·Michele SassanoStefania Boccia
Dec 5, 2019·Public Health Genomics·Stephen M ModellUNKNOWN Genetics and Faith Dialogue Group

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Methods Mentioned

BETA
genotyping

Software Mentioned

Genome Diner

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