Building the National Database of Health Centred on the Individual: Administrative and Epidemiological Record Linkage - Brazil, 2000-2015.

International Journal of Population Data Science
Augusto Afonso Guerra JuniorWagner Meira Junior

Abstract

In Brazil, the National Health System (SUS) provides healthcare to the public. The system has multiple administrative databases; the major databases record hospital (SIH) and outpatient (SIA) procedures. Epidemiological information is collected for all populations in subsystems, such as mortality (SIM), live births (SINASC) and diseases of compulsory declaration (SINAN). Each subsystem has its own information system, which is able to provide information about consultations, clinical information and medicines dispensed. However, these systems are not linked, thereby preventing individual-centred analysis. To describe the methods and results of parameter setting that are needed to execute the probabilistic deduplication of large administrative and epidemiological databases in Brazil and to create a National Health Database Centred on the individual. This paper shows the results of a record linkage model to integrate data from SIH, SIA, SIM, and SINAN, which have different formats and attributes between them and over time. These data consist of 1.3 billion records from 2000-2015. Probabilistic and deterministic record linkages were used to deduplicate these data. The Kappa statistic and clerical review were used to ensure the qual...Continue Reading

Citations

Jan 18, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Mariana Araújo Pena BastosMariângela Leal Cherchiglia
Oct 23, 2020·Expert Review of Pharmacoeconomics & Outcomes Research·Jéssica Barreto Ribeiro Dos SantosJuliana Alvares-Teodoro
Mar 1, 2019·Expert Review of Clinical Pharmacology·Jéssica Barreto Ribeiro Dos SantosJuliana Alvares-Teodoro
Jun 14, 2019·Expert Review of Clinical Immunology·Michael Ruberson Ribeiro da SilvaFrancisco de Assis Acurcio
Oct 15, 2019·Frontiers in Pharmacology·M Sanni AliMauricio L Barreto
Nov 19, 2020·Expert Review of Clinical Immunology·Jéssica Barreto Ribeiro Dos SantosJuliana Alvares-Teodoro
Mar 21, 2020·International Journal of Environmental Research and Public Health·Rosângela Maria GomesAugusto Afonso Guerra Júnior
Jun 17, 2021·BMC Medical Informatics and Decision Making·Claudia Medina CoeliBetina Durovni
Jul 3, 2021·Frontiers in Public Health·Kelsy N ArecoRuth Guinsburg

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