Burden of health-care of carers of children with sickle cell disease in Nigeria

Health & Social Care in the Community
B J BrownO O Akinyinka

Abstract

Sickle cell anaemia in children is characterised by recurrent crises that frequently involve intensive medical care which may impact on the health and well-being of their carers. The psychosocial impact of sickle cell disease on 67 carers of children with sickle cell disease attending the Paediatric Haematology/Oncology clinic of the University College Hospital, Ibadan, Nigeria, was determined between February and May 2007 using a structured questionnaire adapted from an instrument earlier validated for the study of carer burden in sickle cell disease and relevant to the Nigerian culture. Data analysis was performed using the Statistical Package for Social Sciences (SPSS) version 15.0. Demographic factors as well as frequency of hospitalisations and blood transfusions were each categorised into groups and the Mann-Whitney U-test was used to test for differences in stress scores between any two groups while the Kruskal-Wallis test was used to test for differences in more than two groups. Level of statistical significance was set at P < 0.05. Family finances were adversely affected in 39 (58.2%) families. Financial stress was frequently associated with a history of two or more hospitalisations in the previous year and more so in ...Continue Reading

References

Jan 1, 1974·Clinical Pediatrics·A BamisaiyeM O Olatawura
Jan 1, 1966·The International Journal of Social Psychiatry·J Hoenig, M W Hamilton
Sep 19, 2001·Health & Social Care in the Community·Karl Atkin, Waqar I. U. Ahmad
May 11, 2002·East African Medical Journal·J U Ohaeri, W A Shokunbi
May 13, 2003·Clinical Cornerstone·N T Mathew
Jun 14, 2003·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Esther Sales
Jul 27, 2005·British Journal of Haematology·Julie A PanepintoJ P Scott
Aug 9, 2005·International Journal of Behavioral Medicine·Christopher L EdwardsAlvin Killough
Aug 17, 2005·The Journal of School Health·Howard Taras, William Potts-Datema
Mar 7, 2008·Haematologica·Xandra W van den TweelMartha Grootenhuis

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Citations

Nov 7, 2012·International Journal of Hematology·I A Lagunju, B J Brown
Oct 11, 2012·Revista brasileira de hematologia e hemoterapia·Luiz Bernardino Lima da SilvaOlinda Maria Rodrigues de Araujo
Jul 25, 2013·Journal of Genetic Counseling·Ambroise WonkamFru F Angwafo
Feb 16, 2018·The Cochrane Database of Systematic Reviews·Oluseyi Oniyangi, Damian H Cohall
Dec 13, 2018·Revista paulista de pediatria : orgão oficial da Sociedade de Pediatria de São Paulo·Amanda Cristina da Silva de JesusJosefina Aparecida Pellegrini Braga
Sep 26, 2020·The Cochrane Database of Systematic Reviews·Oluseyi Oniyangi, Damian H Cohall
Mar 6, 2021·Journal of Blood Medicine·Oladele Simeon OlatunyaAdekunle Adekile
Jun 20, 2021·Journal of Genetic Counseling·Karen Kengne KamgaAmbroise Wonkam

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