Callosotomy in children - Parental experiences reported at long-term follow-up

Epilepsy & Behavior : E&B
Anneli OzanneKristina Malmgren

Abstract

Callosotomy is a palliative surgery method for selected individuals with severe, drug-resistant epilepsy. The aim of this retrospective study was to explore parental experiences of the family's life situation before and long after their child had undergone callosotomy. Semistructured interviews of the parents of 12 children were analyzed using a combination of inductive and deductive qualitative content analysis. Before surgery, parents felt that they lived in a chaotic bubble with an unbearable situation; their child had severe and frequent seizures and had to be looked after constantly. Most parents were both satisfied and dissatisfied with the given support and information. However, if the child did not improve after surgery, parents often felt that the information before surgery had not been adequate. After surgery, they found a glimpse of hope. They felt that the family got a new life; the reduced seizure severity led to a better life situation for the family. The support was described as both good and poor. The family life situation was complex, and even if they were partly satisfied with the support, it was still not enough. However, the life situation was also very stressful because of remaining seizures, behavioral pro...Continue Reading

Citations

Jun 13, 2020·Child's Nervous System : ChNS : Official Journal of the International Society for Pediatric Neurosurgery·Vincent C YeGeorge M Ibrahim
Jun 5, 2021·Epilepsy & Behavior : E&B·Sofia LjunggrenAnneli Ozanne

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