Can the democratic ideal of participatory research be achieved? An inside look at an academic-indigenous community partnership

Health Education Research
Margaret CargoA C Macaulay

Abstract

Democratic or equal participation in decision making is an ideal that community and academic stakeholders engaged in participatory research strive to achieve. This ideal, however, may compete with indigenous peoples' right to self-determination. Study objectives were to assess the perceived influence of multiple community (indigenous) and academic stakeholders engaged in the Kahnawake Schools Diabetes Prevention Project (KSDPP) across six domains of project decision making and to test the hypothesis that KSDPP would be directed by community stakeholders. Self-report surveys were completed by 51 stakeholders comprising the KSDPP Community Advisory Board (CAB), KSDPP staff, academic researchers and supervisory board members. KSDPP staff were perceived to share similar levels of influence with (i) CAB on maintaining partnership ethics and CAB activities and (ii) academic researchers on research and dissemination activities. KSDPP staff were perceived to carry significantly more influence than other stakeholders on decisions related to annual activities, program operations and intervention activities. CAB and staff were the perceived owners of KSDPP. The strong community leadership aligns KSDPP with a model of community-directed re...Continue Reading

References

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Jul 10, 2003·Journal of General Internal Medicine·Philip Nyden
Aug 16, 2003·Health Promotion International·Margaret CargoUNKNOWN Kahnawake Schools Diabetes Prevention Project (KSDPP) Community Advisory Board
Aug 13, 2004·Health Promotion International·Sherri BissetLouise Potvin
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Citations

Dec 1, 2001·American Journal of Public Health·K M MacQueenR T Trotter
Nov 2, 2011·American Journal of Health Promotion : AJHP·Margaret D CargoAnn C Macaulay
Jan 12, 2011·Annual Review of Public Health·Mark DanielAlex Brown
Jul 30, 2015·International Journal of Circumpolar Health·Shelagh K GenuisCindy G Jardine
Jun 14, 2013·Health Promotion International·R M PintoJ D Gastolomendo
Apr 2, 2010·Heart, Lung & Circulation·Mark DanielMargaret Cargo
Aug 25, 2016·Journal of Empirical Research on Human Research Ethics : JERHRE·Carlton Lawrence, Kearsley Stewart
May 5, 2017·American Journal of Community Psychology·Marie-Claude TremblayPierre Pluye
May 28, 2016·Health Education & Behavior : the Official Publication of the Society for Public Health Education·Leah FrerichsGiselle Corbie-Smith
Dec 11, 2008·Environmental Management·Minna Hares
Jul 26, 2019·American Journal of Community Psychology·Stacy M RasmusJames Allen
Jul 10, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Janet HarrisMarit Graue
May 29, 2015·The Medical Journal of Australia·Sophia CouzosDavid P Thomas
Mar 13, 2012·Journal of Acquired Immune Deficiency Syndromes : JAIDS·Eileen M DelaneyTerence M Keane

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