Cancer genetics service provision: a comparison of seven European centres

Community Genetics
P HopwoodC Julian-Reynier

Abstract

To conduct a survey in seven European cancer genetics centres to compare service provision, organisation and practices for familial breast and colon cancer consultations and testing. Information was obtained on aspects of services both nationally and locally. A detailed survey questionnaire was adapted collaboratively to obtain the required information. Initial survey data were collected within each centre and interim results were discussed at two European Workshops. Where differences in practice existed, details were clarified to ensure accuracy and adequacy of information. Participating centres were Haifa (Israel), Hannover (Germany), Leiden (The Netherlands), Leuven (Belgium), Manchester (UK), Marseille (France) and Milan (Italy), representing countries with populations ranging from 6.5 to 80 million. The European countries diverged in regard to the number of cancer genetics centres nationally (from 8 in Belgium to 37 in France), and the average population served by each centre (from 0.59 million in Israel to 3.32 million in Italy). All centres offered free care at the point of access, but referral to specialist care varied according to national health care provision. At a centre level, staff roles varied due to differences ...Continue Reading

Citations

Jun 27, 2008·Journal of Genetic Counseling·Michael J HallOlufunmilayo I Olopade
Sep 14, 2004·Médecine sciences : M/S·Christine SevillaUNKNOWN Groupe Génétique et Cancer
Dec 13, 2006·International Journal of Nursing Studies·Caroline BenjaminKatie Booth
Jan 20, 2009·Prenatal Diagnosis·Maximilian SchmidWibke Blaicher
Mar 28, 2006·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Julien ManciniClaire Julian-Reynier
Jul 8, 2011·Public Health Genomics·R N BattistaN Leduc

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