Cancer Patient Experience in the Teenage Young Adult Population- Key Issues and Trends Over Time: An Analysis of the United Kingdom National Cancer Patient Experience Surveys 2010-2014

Journal of Adolescent and Young Adult Oncology
Caroline L FurnessRachael E Hough

Abstract

Improving outcomes for teenagers and young adults (TYA) with cancer is a key element of the national cancer strategy in England. Recognition of the unique needs of this group has led to the development of recommendations for specific models of care and delivery of this care through the provision of dedicated clinical units in principal treatment centers (PTCs) across the United Kingdom. The aim of this study was to understand the current cancer patient experience for this patient group. We aimed to determine whether treatment experience is influenced by place of treatment and whether it has changed over time using patient-reported data from national cancer patient experience surveys. This study highlights that a prolonged pathway to diagnosis remains an issue for the TYA group and identifies areas on which quality improvement measures for TYA services should focus, including communication and involvement of the patient in treatment decisions. Positive experiences for the TYA group such as involvement in research were also highlighted. Treatment within a TYA PTC was associated with positive patient perception in a number of key areas highlighting the need for future studies to fully elucidate the impact of the full range of TYA ...Continue Reading

References

Oct 31, 2013·BMJ : British Medical Journal·Lorna A FernFaith Gibson
Jul 6, 2014·The Lancet Oncology·Lorna A FernUNKNOWN National Cancer Research Institute Teenage and Young Adult Clinical Studies Group, UK
Jul 30, 2015·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·C O'HaraM G McCabe
Nov 27, 2015·Journal of Gastrointestinal Surgery : Official Journal of the Society for Surgery of the Alimentary Tract·Aslam EjazTimothy M Pawlik

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Citations

Jan 23, 2018·Journal of Adolescent and Young Adult Oncology·Victoria WhiteAntoinette Anazodo
Jul 24, 2018·Journal of Adolescent and Young Adult Oncology·Lesley SmithDan Stark
Aug 30, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·S M SawyerM McCarthy
May 21, 2019·European Journal of Cancer Care·Sarah LeaRachel M Taylor

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