PMID: 24340413Dec 18, 2013Paper

Care of the complex chronically ill child by generalist pediatricians: lessons learned from pediatric palliative care

Hospital Pediatrics
Jennifer K WalterPatricia M Keefer

Abstract

Parents of children with complex chronic conditions report fragmented care, unmet medical needs, and financial strain from health care costs. The aim of this study was to identify both prevalent themes discussed during pediatric palliative care consultation of patients with complex chronic conditions cared for by pediatric generalists and variation in consultation content by age and timing of consultation in disease course. Forty randomly selected initial inpatient or outpatient consultation notes authored by the pediatric palliative care team at an academic, tertiary care children's hospital. Inclusion required that patients were primarily cared for by general pediatricians, pediatric hospitalists, or pediatric intensivists, instead of subspecialists. Qualitative analysis by 5 team members utilizing consensus-based findings was used to develop themes. Descriptive statistics were used to describe variations in themes across age and disease course. Common themes included thorough review of patient baseline functioning, current symptoms, assessment of family's understanding of the prognosis of the patient, coordination of communication with other medical teams and outpatient health care services, consideration of caregiver resour...Continue Reading

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Citations

Jun 17, 2016·Journal of Evaluation in Clinical Practice·Joachim P SturmbergDavid A Katerndahl
Sep 10, 2016·Journal of Paediatrics and Child Health·Martha F MherekumombeJohn Collins
Oct 3, 2015·The American Journal of Hospice & Palliative Care·Lisa C Lindley, Savithri Nageswaran
Mar 22, 2018·Journal of General Internal Medicine·Sarah ZieglerMilo Alan Puhan
Jul 10, 2019·Journal of Nursing Scholarship : an Official Publication of Sigma Theta Tau International Honor Society of Nursing·Bibiana Pérez-ArdanazShakira Kaknani-Uttumchandani
Aug 25, 2019·Acta Paediatrica·Anne-Josée CôtéNathalie Gaucher
Nov 8, 2017·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Sally NissenCarolyn Dunford
Jul 4, 2019·Ciência & saúde coletiva·Herminia Guimarães Couto FernandezRomeu Gomes
Jun 19, 2018·Journal of Hospice and Palliative Nursing : JHPN : the Official Journal of the Hospice and Palliative Nurses Association·Meaghann S WeaverAndrew Macfadyen
Jun 19, 2021·Archives de pédiatrie : organe officiel de la Sociéte française de pédiatrie·F Z Oztek Celebi, S Senel

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