Care Transitions From Patient and Caregiver Perspectives

Annals of Family Medicine
Suzanne E MitchellBrian W Jack

Abstract

Despite concerted actions to streamline care transitions, the journey from hospital to home remains hazardous for patients and caregivers. Remarkably little is known about the patient and caregiver experience during care transitions, the services they need, or the outcomes they value. The aims of this study were to (1) describe patient and caregiver experiences during care transitions and (2) characterize patient and caregiver desired outcomes of care transitions and the health services associated with them. We interviewed 138 patients and 110 family caregivers recruited from 6 health networks across the United States. We conducted 34 homogenous focus groups (103 patients, 65 caregivers) and 80 key informant interviews (35 patients, 45 caregivers). Audio recordings were transcribed and analyzed using principles of grounded theory to identify themes and the relationship between them. Patients and caregivers identified 3 desired outcomes of care transition services: (1) to feel cared for and cared about by medical providers, (2) to have unambiguous accountability from the health care system, and (3) to feel prepared and capable of implementing care plans. Five care transition services or provider behaviors were linked to achievin...Continue Reading

Citations

Mar 23, 2019·Research in Gerontological Nursing·Jo-Ana D ChaseDavid R Mehr
May 14, 2019·Disability and Rehabilitation·Maliha AsifSara J T Guilcher
Oct 10, 2019·Journal of Oncology Practice·Karen StepanMaria Alma Rodriguez
Dec 14, 2019·Research in Gerontological Nursing·Elliane IraniKathryn H Bowles
Oct 17, 2020·Journal of Patient Experience·Jo-Ana D ChaseDavid R Mehr
Aug 2, 2020·Mayo Clinic Proceedings·Paul Y TakahashiGregory J Hanson
Mar 7, 2021·Healthcare·María Eulalia Macías-ColoradoCristina Teresa-Morales
Mar 17, 2021·JAMA Network Open·Julia G BurgdorfJennifer L Wolff
Jun 5, 2021·Research Involvement and Engagement·Troels Kjærskov HansenMerete Gregersen
Jun 7, 2021·Heart & Lung : the Journal of Critical Care·Sijia WeiBradi Granger
Jun 12, 2021·Patient Preference and Adherence·Jessica Miller ClouserJing Li
Jul 10, 2020·Journal of the American Medical Directors Association·Julia G BurgdorfJennifer L Wolff
Aug 7, 2021·Omega·Stephanie P WladkowskiAbigail Latimer
Nov 4, 2021·Stroke; a Journal of Cerebral Circulation·Michelle CamiciaStephanie Vaughn
Dec 29, 2021·Hospital Pediatrics·Matthew H ShapiroVictoria A Rodriguez

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