Caregiver education in Parkinson's disease: formative evaluation of a standardized program in seven European countries.

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
L E I A'CampoR A C Roos

Abstract

The formative evaluation of a standardized psychosocial education program for patients with Parkinson's disease (PD) and their caregivers. The results of the participation of the caregivers are presented next to the data of the patients. Caregivers (n = 137) and patients with PD (n = 151) participated in the 8-week program in separate groups. Measurements were performed on psychosocial problems (BELA-P/A-k), health state (EQ-5D VAS), quality of life (PDQ-39) and depression (SDS) 1 week before and 1 week after the program. Participants rated their mood on a visual analogue scale before and after each session, and they filled in an evaluation questionnaire after the last session. Scores on the BELA-P/A-k improved significantly on the 'bothered by scale' as well as the 'need for help scale'. No improvements were found on EQ-5D VAS, PDQ-39 and SDS. Mood ratings improved significantly after each session. Most participants evaluated the program as positive. Feedback led to improvements in the program, which are incorporated in a final manual. The program was feasible to run in the different countries. This exploratory study led to improvements in the program and recommendations for further research. A study on the effectiveness of th...Continue Reading

References

Apr 1, 1978·The British Journal of Psychiatry : the Journal of Mental Science·J T BiggsV E Ziegler
Apr 1, 1975·Journal of Psychiatric Research·R E Luria
Nov 1, 1975·Journal of Psychiatric Research·M F FolsteinP R McHugh
Sep 1, 1995·Patient Education and Counseling·W H Oertel, H Ellgring
Jun 1, 1995·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·V PetoR Greenhall
Feb 7, 1998·American Journal of Public Health·J J CochraneJ M Rogers
Feb 6, 1998·Movement Disorders : Official Journal of the Movement Disorder Society·J H CarterK Zoog
Jul 2, 1999·Stroke; a Journal of Cerebral Circulation·B Han, W E Haley
Oct 16, 1999·International Journal of Geriatric Psychiatry·D AarslandE Tandberg
Jan 22, 2002·International Journal of Geriatric Psychiatry·Bente ThommessenKnut Laake
Jun 1, 2002·The Gerontologist·Silvia SörensenPaul Duberstein
May 2, 2003·Movement Disorders : Official Journal of the Movement Disorder Society·Noëlle G A Spliethoff-KammingaRaymund A C Roos
Jun 11, 2003·Journal of Pediatric Nursing·Hana HaiatMaskit Shochat
Sep 5, 2003·Der Orthopäde·M Rittmeister, S Rupp
Jan 1, 1965·Archives of General Psychiatry·W W ZUNG
Oct 31, 2003·Journal of Neurology·Noëlle G A Spliethoff-KammingaRaymund A C Roos
Mar 19, 2005·Journal of Neurology, Neurosurgery, and Psychiatry·D L Secker, R G Brown
May 17, 2005·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Pablo Martínez-MartínJ de Pedro
Apr 28, 2006·Current Opinion in Psychiatry·Mary Mittelman
May 12, 2006·International Psychogeriatrics·Martin Pinquart, Silvia Sörensen
Jun 20, 2006·Parkinsonism & Related Disorders·Gwenda SimonsUNKNOWN Members of the EduPark consortium
Nov 14, 2006·Applied Nursing Research : ANR·Barbara Habermann, Linda Lindsey Davis
Nov 18, 2006·Fundamental & Clinical Pharmacology·Markus Neuhäuser
Apr 25, 2007·Journal of Physiology and Biochemistry·C F Reyes-TosoD P Cardinali
Jul 29, 2008·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Martine VisserAnne Stiggelbout

❮ Previous
Next ❯

Citations

Dec 4, 2010·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Elodie J O'Connor, Marita P McCabe
Mar 31, 2012·Expert Review of Pharmacoeconomics & Outcomes Research·Pablo Martinez-MartinMaria João Forjaz
May 21, 2014·Brain Injury : [BI]·Linda DauwerseTineke A Abma
Sep 13, 2015·Clinical Neurology and Neurosurgery·Fien DemeulemeesterPatrick Santens
Dec 17, 2011·International Journal of Clinical Practice·L E I A'CampoR A C Roos
Sep 29, 2011·International Journal of Clinical Practice·L E I A'CampoR A C Roos
Mar 18, 2015·Orvosi hetilap·Péter KincsesJános Kállai
May 11, 2016·Journal of Parkinson's Disease·Jennifer Y Y SzetoSimon J G Lewis
Jan 12, 2017·Evidence-based Mental Health·Ivan Koychev, David Okai
Jul 27, 2017·Journal of Geriatric Psychiatry and Neurology·Philip E MosleyNadeeka Dissanayaka
Jul 19, 2013·Movement Disorders : Official Journal of the Movement Disorder Society·Richard DodelAnette Schrag
May 14, 2020·Journal of Geriatric Psychiatry and Neurology·Philip E MosleyDeidre Pye
Mar 21, 2018·Neural Regeneration Research·María Díez-CirardaNatalia Ojeda
Mar 28, 2019·Frontiers in Neurology·Jenny T van der SteenRaymond T C M Koopmans
Jun 2, 2017·European Journal of Endocrinology·Cornelie D AndelaNienke R Biermasz
May 10, 2021·Lancet·Michael AndersonAlistair McGuire
Dec 26, 2013·The American Journal of Occupational Therapy : Official Publication of the American Occupational Therapy Association·Erin R FosterLinda Tickle-Degnen
Jun 10, 2021·Current Alzheimer Research·Richard S HenryJose A Soto-Escageda

❮ Previous
Next ❯

Software Mentioned

Statistical Package for the Social Sciences ( SPSS )

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Movement Disorders : Official Journal of the Movement Disorder Society
Haruko TanjiLisa M Shulman
Journal of the American Pharmaceutical Association : APhA
T J ReutzelP V Kazerooni
MCN. the American Journal of Maternal Child Nursing
Roberta Cricco-Lizza
© 2022 Meta ULC. All rights reserved