PMID: 11605712Oct 19, 2001Paper

Caregivers' insights on the dying trajectory in hematology oncology

Cancer Nursing
Pam D McGrath

Abstract

It is increasingly acknowledged in the research literature that palliative care is not offered to patients with a hematologic malignancy. The evidence indicates that patients are not dying at home or in the comfort of the hospice setting but are more likely to end up in the high-tech care of an intensive care unit. The holistic, compassionate care of the hospice/palliative care philosophy is not routinely made available to either these patients or the families who care for them. However, little is known about what the end-of-life experience is for such patients and their families and how they are managing to negotiate their dying experience in a system that is designed to cure not to palliate. In particular, there is a dearth of information on what happens to the caregivers during what is characteristically a prolonged and difficult period of sustained caring within the high-tech system. This discussion presents findings from recent research that is beginning to document the experience of the dying trajectory for patients from these diagnostic groups and their families. The hope and expectation from such research is that the information will make a contribution to building multidisciplinary plans of care for hematologic maligna...Continue Reading

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Citations

Aug 18, 2010·Journal of Palliative Medicine·Vanessa J ManittaMerrole F Cole-Sinclair
Sep 1, 2006·International Journal of Nursing Practice·Pam McGrath, Hamish Holewa
May 2, 2007·Journal of Medical Ethics·Padmanabhan RamnarayanChristine Pierce
May 5, 2009·Seminars in Oncology Nursing·Liz CookeMarcia Grant
Dec 6, 2003·Internal Medicine Journal·S Newton
Aug 27, 2009·Nursing in Critical Care·Rebecca SandsAsrar Rashid
Jun 15, 2007·Oncology Nursing Forum·Pam D McGrath, Hamish A Holewa
Apr 27, 2004·Omega·Pam McGrath
Apr 25, 2015·The American Journal of Hospice & Palliative Care·María Elena Uceda-TorresPam McGrath
Aug 4, 2009·International Journal of Palliative Nursing·Elisabeth Spichiger
Aug 20, 2002·The Oncologist·Kristine A KnutiRichard T Penson
Jun 20, 2008·International Journal of Palliative Nursing·Elisabeth Spichiger
Oct 28, 2021·Journal of Palliative Medicine·Marisa M SalazarNandita Khera

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