Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study

International Journal of Environmental Research and Public Health
Isabella CapodannoLuca Ghirotto

Abstract

The role of caregivers in homecare settings is relevant to the patient's wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies. The aim of this study was to explore the experience of primary caregivers of patients with hematological malignancies within home care. We conducted a phenomenological study based on interviews with 17 primary caregivers of hematological patients. Analysis of the contents led to the identification of five main themes. Perhaps, the innovative aspects of this study can be summarized in three points: This service was demonstrated to fulfil the ethical aspects of providing the patient with a dignified accompaniment to the end of life. Secondly, the efficiency of the service and the benefit are directly dependent on the caregivers' wellbeing, so knowledge of the dynamics and emotions involved can lead to the development and implementation of programs for hematological malignancies. Lastly, a collaborative caregivers-professionals relationship can improve a sense of accomplishment for all parties involved, lessening the family's frustration related to not having done their best. Home care brin...Continue Reading

References

Feb 16, 2000·Bone Marrow Transplantation·T SasakiM Atsumi
Apr 10, 2002·Qualitative Health Research·Linda Finlay
Oct 29, 2002·Annals of Oncology : Official Journal of the European Society for Medical Oncology·I G FinlayC E Normand
May 20, 2003·Scandinavian Journal of Caring Sciences·Ireen M ProotGuy A M Widdershoven
Apr 30, 2005·Journal of Palliative Medicine·I J Higginson, G J Sen-Gupta
Aug 31, 2007·Scandinavian Journal of Caring Sciences·Margareta BrännströmGunilla Strandberg
Mar 14, 2009·The Oncologist·Heidi D Klepin, Lodovico Balducci
Aug 25, 2009·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Andrea TendasPaolo de Fabritiis
Dec 10, 2009·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Alex MolassiotisJames Cavet
Jul 14, 2010·The Journal of Hospital Infection·C AbadN Safdar
Aug 18, 2010·Journal of Palliative Medicine·Vanessa J ManittaMerrole F Cole-Sinclair
Mar 16, 2011·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Thi H HoCraig C Earle
May 4, 2011·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Kiran NaqviMaria E Suarez-Almazor
Nov 11, 2011·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·R HardingI J Higginson
Apr 5, 2013·PLoS Medicine·Wei GaoUNKNOWN GUIDE_Care project
Jul 5, 2013·Journal of Palliative Medicine·Cathy Lynn CorbettOdette Spruyt
Nov 28, 2013·Clinical Journal of Oncology Nursing·Sandra KurtinJacy Spong
Apr 8, 2014·Cancer Treatment and Research·Vicki A Morrison
Jul 1, 2014·Academic Medicine : Journal of the Association of American Medical Colleges·Bridget C O'BrienDavid A Cook
Oct 9, 2014·Journal of Oncology Practice·Oreofe O OdejideGregory A Abel
Dec 6, 2014·Frontiers in Psychology·Claudia CormioVittorio Mattioli
Aug 9, 2015·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Lesley A HensonUNKNOWN BuildCARE
Jan 20, 2016·Acta Oncologica·Lukas F OciasUNKNOWN Academy of Geriatric Cancer Research (AgeCare)
Sep 23, 2016·International Journal of Nursing Studies·J Martín MartínM Saracíbar-Razquin
Jul 13, 2017·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Violet D'SouzaPaul J Allison

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Citations

Aug 23, 2020·International Journal of Environmental Research and Public Health·Claudia CarmassiLiliana Dell'Osso
Apr 18, 2021·Current Hematologic Malignancy Reports·Thomas M Kuczmarski, Oreofe O Odejide

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