Caregiving burden and uplifts: a contradiction or a protective partnership for the quality of life of parents and their children with asthma?

Journal of Family Psychology : JFP : Journal of the Division of Family Psychology of the American Psychological Association (Division 43)
Neuza SilvaM C Canavarro

Abstract

Parental caregiving in the context of pediatric chronic conditions is a multifaceted experience that encompasses negative (burdens) and positive dimensions (uplifts), which may support risk and protective processes that influence family adaptation. This study aimed to examine the caregiving experience of parents caring for a child with asthma and the moderating role of caregiving uplifts on the associations between caregiving burden and quality of life (QoL) of parents and their children. Participants were 180 dyads of children/adolescents with asthma between 8 and 18 years of age and one of their parents. The parents reported on caregiving burden and uplifts and on their QoL, and the children/adolescents completed a self-report measure of generic QoL. Results showed that although parents of children with intermittent asthma and parents of younger children presented higher levels of caregiving burden, noncontrolled asthma was the only clinical variable representing a significant risk factor for decreased QoL in children. Significant negative and positive associations were found between burden dimensions and QoL and between caregiving uplifts and QoL, respectively, in parents and children. Additionally, caregiving uplifts modera...Continue Reading

Citations

Dec 12, 2019·Journal for Specialists in Pediatric Nursing : JSPN·Li HanAimin Wang
Jun 22, 2017·The Journal of Asthma : Official Journal of the Association for the Care of Asthma·Birgitta LagercrantzInger Kull
Apr 18, 2020·Journal of Pediatric Health Care : Official Publication of National Association of Pediatric Nurse Associates & Practitioners·Cynthia L ForondaSadandaula Rose Muheriwa
Jun 22, 2021·Nursing Children and Young People·Heather Henry
Oct 25, 2021·Journal of Pediatric Health Care : Official Publication of National Association of Pediatric Nurse Associates & Practitioners·Carolyn C FosterMatthew M Davis

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