Caregiving Experience for Children with Intellectual Disabilities among Parents in a Developing Area in China

Journal of Applied Research in Intellectual Disabilities : JARID
Xue YangMarcus Y L Chiu

Abstract

By utilizing grounded theory methodology, this study attempted to fill a gap whereby little research explored family caregiving perspectives in China where public support is insufficient and familial responsibility is highly valued. Data were collected through the qualitative methods of interviews and observations among a purposive sample of 15 parents of children with intellectual disabilities in central China. The central idea emerging from the data encompassed five broad categories of caregiving experiences: (i) unavoidable caregiving responsibility and (ii) uncertain future as the greatest worries which are the perception towards the recipient; (iii) compromising quality of life and (iv) positive roles of caregiving tasks which focus on the self; and (v) community support which is the perceived support from the external system. A recursive relationship existed among these categories. Chinese culture and traditional beliefs dominated throughout these issues. The implications and limitations of this study were discussed.

References

May 31, 2001·Journal of Advanced Nursing·P M Kearney, T Griffin
Dec 13, 2003·Proceedings of the National Academy of Sciences of the United States of America·Sunran KimElizabeth M Lord
Aug 12, 2006·Journal of Intellectual Disability Research : JIDR·Y L Chiu Marcus, C H Hung Rommel
Oct 4, 2006·Social Science & Medicine·Sara Eleanor Green
Apr 19, 2008·Social Science & Medicine·Lawrence Hsin Yang, Arthur Kleinman
Jan 10, 2012·Journal of Family Nursing·Regina Szylit BoussoLisabelle Mariano Rossato
Jan 10, 2012·Journal of Family Nursing·Gwen R RempelVinitha Ravindran

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