Caregiving time in sickle cell disease: psychological effects in maternal caregivers

Pediatric Blood & Cancer
Judith Tedlie MoskowitzSusan Folkman

Abstract

Providing home care for a child with a chronic illness can be stressful for the family. The purpose of this paper is to examine patterns of caregiving and the associated psychological impact on maternal caregivers of children with sickle cell disease (SCD). Fourteen maternal caregivers of children with SCD were interviewed as part of a larger study of maternal caregivers of children with chronic illness. Forty-four caregivers of children with HIV and 36 caregivers of healthy children were included as comparison groups. Interviews included questions regarding amount of time spent providing care for the child (technical care, non-technical care, health care management), hospitalization, emergency room visits, illness stigma, and mental health of the caregiver. Children with SCD had significantly lower functional status and significantly more hospitalizations in the previous 3 months than children with HIV. Caregivers of children with SCD were more likely to work full-time and had higher incomes than caregivers of children with HIV. The three caregiving groups did not differ significantly on amount of total care, although caregivers of children with SCD and caregivers of children with HIV both reported significantly more time spen...Continue Reading

References

Jan 1, 1991·Child Psychiatry and Human Development·S J Weiss
Nov 1, 1990·Medical Care·R E Stein, D J Jessop
Jun 1, 1988·Journal of Developmental and Behavioral Pediatrics : JDBP·D J JessopR E Stein
Aug 1, 1995·Journal of Pediatric Psychology·M R DaddsE J Silver
Jun 9, 1994·The New England Journal of Medicine·O S PlattP P Klug
Jun 1, 1996·Pediatric Clinics of North America·P A Lane
Oct 1, 1996·Journal of Pediatric Psychology·J L LustigB B Walsh
Dec 1, 1996·Journal of Pediatric Nursing·C B Hughes, G Caliandro
Feb 1, 1997·Health & Social Work·K L HacklS C Kalichman
Apr 21, 1999·Journal of Advanced Nursing·C T Beck
Aug 30, 2000·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·R T BrownJ Eckman
Sep 7, 2000·Social Science & Medicine·R G Wight
Jul 5, 2001·Journal of Developmental and Behavioral Pediatrics : JDBP·C E Ievers-LandisA A Walker
Jul 2, 2002·Health Psychology : Official Journal of the Division of Health Psychology, American Psychological Association·Gail M WilliamsonDavid R Shaffer
Jan 7, 2004·AIDS and Behavior·Ellen Johnson SilverJan Hudis
Feb 3, 2004·Pediatrics·Patrick CaseyUNKNOWN Children's Sentinel Nutritional Assessment Program Study Group
Oct 14, 2004·The Journal of Pediatrics·Melvin B HeymanSusan Folkman
Jun 7, 2005·Social Science & Medicine·Judith WrubelSusan Folkman

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Citations

Apr 25, 2013·Journal of Clinical Psychology in Medical Settings·Jamie L RyanJohn M Chaney
Jul 25, 2013·Journal of Genetic Counseling·Ambroise WonkamFru F Angwafo
Feb 22, 2014·Journal of Genetic Counseling·Ambroise WonkamFru F Angwafo
Nov 24, 2012·Journal of Community & Applied Social Psychology·Judith Tedlie MoskowitzSusan Folkman
Aug 3, 2013·Health & Social Care in the Community·Marilyn Macdonald, Ariella Lang
Apr 3, 2016·Developmental Medicine and Child Neurology·Jamie M KawadlerFenella J Kirkham
Jun 17, 2015·Journal of Health Psychology·Shan-Estelle BrownWilliam H Sledge
Jan 30, 2013·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Kathryn Berry Carter, Belinda N Mandrell
Feb 7, 2012·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Damhnat McCannTania Winzenberg
Apr 18, 2009·Health and Quality of Life Outcomes·Julie A PanepintoNicholas M Pajewski
May 23, 2008·The Clinical Journal of Pain·Lamia P BarakatJerilynn Radcliffe
Dec 10, 2019·Journal of Pediatric Hematology/oncology·Steven K ReaderJanet A Deatrick
May 7, 2020·Journal of Pediatric Psychology·Bethany G KuertenEve S Puffer
Sep 12, 2018·Health and Quality of Life Outcomes·Badr M MadaniMarie-Isabelle Al Awa
Apr 2, 2020·Journal of Pediatric Psychology·Taniya E VarugheseAllison A King
May 25, 2013·Revista paulista de pediatria : orgão oficial da Sociedade de Pediatria de São Paulo·Adeline Soraya de O da P MenezesJosefina Aparecida P Braga
Jan 24, 2021·Journal of Pediatric Psychology·Soumitri SilLindsey L Cohen
Jan 8, 2022·Journal of Clinical Psychology in Medical Settings·Yelena L JohnsonSoumitri Sil

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