Carer experiences of life after stroke - a qualitative analysis

Disability and Rehabilitation
Cathy BulleyLisa Salisbury

Abstract

Carers' experiences of caring for a stroke survivor were explored, including reactions and changes in their lives. A phenomenological approach was taken to the collection and analysis of data. Semi-structured interviews lasting an average of 43 min were carried out with nine informal carers in their own homes. All were married to someone who had survived a stroke. An overarching theme emerged, entitled: 'lives turned upside-down'. It took time for participants to understand the long-term impacts of stroke. Carers experienced increased caring and domestic workloads alongside reduced participation and altered expectations of life. They found emotional and cognitive changes in their partners particularly distressing, and would have valued more information and help with adjusting to the increased emotional, physical and cognitive workload of caring. It is important to support carers of people who have survived a stroke in adjusting to their changed lifestyles. This may affect their quality of life as well as sustainability of caring, and requires further research.

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Citations

Dec 19, 2015·Disability and Rehabilitation·Tamilyn BakasGwendolyn Morrison
Jun 24, 2015·The Journal of Rural Health : Official Journal of the American Rural Health Association and the National Rural Health Care Association·Megan M DanzlSarah Campbell
Oct 4, 2013·The Journal of Rural Health : Official Journal of the American Rural Health Association and the National Rural Health Care Association·Megan M DanzlAnne Harrison
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Jun 17, 2020·Disability and Rehabilitation·Maria Stella Stein, Frances Ann Reynolds
Jul 22, 2018·Topics in Stroke Rehabilitation·Muditha Wagachchige MuthucumaranaCarina Elgán
Dec 21, 2020·Research in Nursing & Health·Elton H LoboMohamed Abdelrazek

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