Challenges Associated With Using Large Data Sets for Quality Assessment and Research in Clinical Settings

Policy, Politics & Nursing Practice
Bevin CohenElaine Larson

Abstract

The rapidly expanding use of electronic records in health-care settings is generating unprecedented quantities of data available for clinical, epidemiological, and cost-effectiveness research. Several challenges are associated with using these data for clinical research, including issues surrounding access and information security, poor data quality, inconsistency of data within and across institutions, and a paucity of staff with expertise to manage and manipulate large clinical data sets. In this article, we describe our experience with assembling a data-mart and conducting clinical research using electronic data from four facilities within a single hospital network in New York City. We culled data from several electronic sources, including the institution's admission-discharge-transfer system, cost accounting system, electronic health record, clinical data warehouse, and departmental records. The final data-mart contained information for more than 760,000 discharges occurring from 2006 through 2012. Using categories identified by the National Institutes of Health Big Data to Knowledge initiative as a framework, we outlined challenges encountered during the development and use of a domain-specific data-mart and recommend appr...Continue Reading

References

Jan 1, 1991·International Journal of Clinical Monitoring and Computing·R M GardnerH F Young
Aug 1, 1997·International Journal of Clinical Monitoring and Computing·J D DaltoL Egbert
Jun 1, 2000·Journal of the American Medical Informatics Association : JAMIA·J J Cimino
Apr 2, 2005·Journal of the American Medical Informatics Association : JAMIA·Nancy C NelsonReed M Gardner
Mar 3, 2007·Journal of the American Medical Informatics Association : JAMIA·David K VawdreyFrank A Drews
Oct 20, 2007·Journal of the American Medical Informatics Association : JAMIA·Stephen B JohnsonPeter Stetson
Oct 24, 2007·International Journal of Medical Informatics·Kristiina HäyrinenPirkko Nykänen
Oct 17, 2008·Nursing Outlook·Bonnie L WestraGail Keenan
Mar 27, 2009·The New England Journal of Medicine·David Blumenthal
Aug 12, 2009·Clinical Infectious Diseases : an Official Publication of the Infectious Diseases Society of America·Michael A Jhung, Shailen N Banerjee
Sep 30, 2010·Joint Commission Journal on Quality and Patient Safety·Timothy LandersElaine Larson
Jan 15, 2011·Journal of the American Medical Informatics Association : JAMIA·S Trent RosenbloomKevin B Johnson
Oct 28, 2011·Clinical and Translational Science·Mandar ApteElaine Larson
Dec 6, 2011·Surgical Infections·Mandar ApteElaine Larson
May 9, 2012·Infection Control and Hospital Epidemiology : the Official Journal of the Society of Hospital Epidemiologists of America·Sameer J PatelElaine Larson
Jun 16, 2012·Clinical Infectious Diseases : an Official Publication of the Infectious Diseases Society of America·Matthew J NeidellElaine L Larson
Sep 11, 2012·Journal of the American Medical Informatics Association : JAMIA·Caitlin M CusackLena Mamykina
Oct 17, 2012·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Benjamin J MiriovskyAmy P Abernethy
Nov 13, 2012·Infection Control and Hospital Epidemiology : the Official Journal of the Society of Hospital Epidemiologists of America·Christie Y JeonElaine Larson
Apr 4, 2013·Epidemiology·Sengwee Toh, Richard Platt
Apr 4, 2013·JAMA : the Journal of the American Medical Association·Travis B Murdoch, Allan S Detsky
Apr 19, 2013·European Archives of Paediatric Dentistry : Official Journal of the European Academy of Paediatric Dentistry·H D Herman, M Ashkenazi
Feb 11, 2014·Journal of the American Medical Informatics Association : JAMIA·Lucila Ohno-Machado
Mar 19, 2014·Journal of Infection and Public Health·Caitlin M WolfeElaine Larson
Jul 10, 2014·Health Affairs·John D Halamka

❮ Previous
Next ❯

Citations

Jul 31, 2016·Healthcare : the Journal of Delivery Science and Innovation·Elise RussoHardeep Singh
Jan 4, 2017·Journal of Clinical Nursing·Gianfranco SansonFabio D'Agostino
Mar 24, 2016·Revista da Escola de Enfermagem da U S P·Rodrigo JensenMaria Madalena Januário Leite
Mar 19, 2019·Nursing Research·Jianfang LiuJingjing Shang
Apr 6, 2019·Journal of Advanced Nursing·Allison SquiresSimon Jones
Apr 14, 2017·Surgical Infections·Kenrick D CatoElaine Larson
Aug 29, 2020·European Journal of Epidemiology·Krishna Margadhamane GokhaleKrishnarajah Nirantharakumar
Oct 21, 2016·International Journal of Environmental Research and Public Health·Ho Ting WongAlice Yuen Loke
Jul 25, 2017·The Journal of Perinatal & Neonatal Nursing·Reeta LamminpääKatri Vehviläinen-Julkunen
Sep 19, 2020·Clinical Orthopaedics and Related Research·Rafa RahmanCasey J Humbyrd
May 15, 2021·Journal of the American Academy of Orthopaedic Surgeons. Global Research & Reviews·Sarah M HannaKenneth R Gundle
Jun 22, 2021·Journal of the American Medical Informatics Association : JAMIA·Lisiane PruinelliGyorgy Simon
Mar 18, 2019·Journal of Biomedical Informatics·Bei LiXiaoyun Lan
May 25, 2021·Computers, Informatics, Nursing : CIN·Courtney OmaryRoy L Simpson

❮ Previous
Next ❯

Software Mentioned

BD2K

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

The Medical Annals of the District of Columbia
J MASUR
JAMA : the Journal of the American Medical Association
G H HUNT, G D WHEDON
Bulletin of the World Health Organization
Jørn Braa
© 2021 Meta ULC. All rights reserved