Challenges created by data dissemination and access restrictions when attempting to address community concerns: individual privacy versus public wellbeing.

International Journal of Circumpolar Health
Amy ColquhounJuanita Hatcher

Abstract

Population health data are vital for the identification of public health problems and the development of public health strategies. Challenges arise when attempts are made to disseminate or access anonymised data that are deemed to be potentially identifiable. In these situations, there is debate about whether the protection of an individual's privacy outweighs potentially beneficial public health initiatives developed using potentially identifiable information. While these issues have an impact at planning and policy levels, they pose a particular dilemma when attempting to examine and address community concerns about a specific health problem. Research currently underway in northern Canadian communities on the frequency of Helicobacter pylori infection and associated diseases, such as stomach cancer, is used in this article to illustrate the challenges that data controls create on the ability of researchers and health officials to address community concerns. Barriers are faced by public health professionals and researchers when endeavouring to address community concerns; specifically, provincial cancer surveillance departments and community-driven participatory research groups face challenges related to data release or access ...Continue Reading

References

Dec 15, 1992·The Science of the Total Environment·D Wartenberg, M Greenberg
Apr 1, 1991·Journal of Community Health·M Greenberg, D Wartenberg
Aug 11, 2000·American Journal of Public Health·C W Trumbo
Feb 5, 2002·Risk Analysis : an Official Publication of the Society for Risk Analysis·M SiegristH Gutscher
Apr 6, 2002·BMJ : British Medical Journal·Adrian EdwardsAl Mulley
Apr 20, 2004·Toxicology Letters·Lynn Frewer
Sep 17, 2004·CA: a Cancer Journal for Clinicians·Michael J Thun, Thomas Sinks
Jun 24, 2005·Health Care Analysis : HCA : Journal of Health Philosophy and Policy·Ronald Bayer, Amy Fairchild
Nov 2, 2005·Journal of Health Services Research & Policy·Sarah BowenUNKNOWN Need to Know Team
Mar 21, 2007·Environmental Health Perspectives·Beverly S KingsleyCarol H Rubin
Mar 21, 2008·Canadian Journal of Gastroenterology = Journal Canadien De Gastroenterologie·K J GoodmanS Veldhuyzen van Zanten
Jun 17, 2008·American Journal of Public Health·Suzanne ChristopherSara Young
Sep 18, 2008·Risk Analysis : an Official Publication of the Society for Risk Analysis·Andrea Gurmankin LevyPeter Guarnaccia
Nov 20, 2008·Canadian Journal of Gastroenterology = Journal Canadien De Gastroenterologie·Justin CheungUNKNOWN CANHelp working group
Apr 2, 2009·JAMA : the Journal of the American Medical Association·Lawrence O Gostin, Sharyl Nass
Jan 16, 2010·American Journal of Public Health·Daniel Wartenberg, W Douglas Thompson
Jan 1, 2010·Viruses·Yolaine Cavignac, Audrey Esclatine

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Risk Analysis : an Official Publication of the Society for Risk Analysis
Andrea Gurmankin LevyPeter Guarnaccia
Journal of Public Health Management and Practice : JPHMP
Eric M RobertsKaren Pierce
© 2021 Meta ULC. All rights reserved