Challenges in supporting lay carers of patients at the end of life: results from focus group discussions with primary healthcare providers

BMC Family Practice
Katja KrugFrank Peters-Klimm

Abstract

Family caregivers (FCGs) of patients at the end of life (EoL) cared for at home receive support from professional and non-professional care providers. Healthcare providers in general practice play an important role as they coordinate care and establish contacts between the parties concerned. To identify potential intervention targets, this study deals with the challenges healthcare providers in general practice face in EoL care situations including patients, caregivers and networks. Focus group discussions with general practice teams in Germany were conducted to identify barriers to and enablers of an optimal support for family caregivers. Focus group discussions were analysed using content analysis. Nineteen providers from 11 general practices took part in 4 focus group discussions. Participants identified challenges in communication with patients, caregivers and within the professional network. Communication with patients and caregivers focused on non-verbal messages, communicating at an appropriate time and perceiving patient and caregiver as a unit of care. Practice teams perceive themselves as an important part of the healthcare network, but also report difficulties in communication and cooperation with other healthcare pr...Continue Reading

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Citations

Dec 21, 2019·Health & Social Care in the Community·Jasneet ParmarPeter George J Tian
Oct 7, 2018·British Journal of Community Nursing·Brian Nyatanga
Oct 7, 2021·Journal of Social Work in End-of-life & Palliative Care·Katentemuna Catherine MusondaOliver Mweemba

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