Characterizing online crowdfunding campaigns for patients with kidney cancer.

Cancer Medicine
Hannah S ThomasBenjamin N Breyer

Abstract

Cancer patients incur high care costs; however, there is a paucity of literature characterizing unmet financial obligations for patients with urologic cancers. Kidney cancer patients are particularly burdened by costs associated with novel systemic treatments. This study aimed to ascertain the characteristics of GoFundMe® crowdfunding campaigns for patients with kidney cancer, in order to better understand the financial needs of this population. We performed a cross-sectional, quantitative, and qualitative analysis of all kidney cancer GoFundMe® campaigns since 2010. Fundraising metrics such as goal funds and amount raised, were extracted. Eight independent investigators collected patient, disease and campaign-level variables from campaign stories (κ = 0.72). In addition, we performed a content analysis of campaign narratives spotlighting the primary appeal of the patient's life story. A total of 486 GoFundMe® kidney cancer campaigns were reviewed. The median goal funds were 10,000USD [IQR = 5000, 20,000] and the median amount raised was 1450USD [IQR = 578, 4050]. Most campaigns were for adult males (53%) and 62% of adults had children. A minority were for pediatric patients (17%). Thirty-seven percent of adult patients were pr...Continue Reading

References

Jan 31, 2004·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Nita L SeibelGiulio J D'Angio
Jul 27, 2006·Academic Medicine : Journal of the Association of American Medical Colleges·Richard LofgrenCourtney M Higdon
Mar 4, 2008·Cancer Treatment Reviews·Kiran GuptaClaudie Charbonneau
Dec 3, 2014·Clinical Genitourinary Cancer·Daniel M GeynismanYa-Chen Tina Shih
Mar 2, 2016·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Christopher S LathanDeborah Schrag
Mar 17, 2016·Journal of Oncology Practice·UNKNOWN American Society of Clinical Oncology
Mar 31, 2016·The New England Journal of Medicine·Anneleen BerendeBart Jan Kullberg
May 30, 2016·Lancet·Graham A Colditz, Karen M Emmons
Mar 24, 2017·JAMA : the Journal of the American Medical Association·Michael J Young, Ethan Scheinberg
May 26, 2018·JAMA : the Journal of the American Medical Association·Jeremy SnyderValorie A Crooks
Oct 26, 2018·Journal of Oncology Practice·Thomas G KnightGrant R Williams
Mar 29, 2020·Journal of Cancer Research and Clinical Oncology·Sikai SongBenjamin N Breyer
Jun 12, 2020·Cancer Epidemiology, Biomarkers & Prevention : a Publication of the American Association for Cancer Research, Cosponsored by the American Society of Preventive Oncology·Angela B MariottoK Robin Yabroff
Dec 4, 2020·JAMA Network Open·Elisabeth R SilverNicholas P Tatonetti
Mar 30, 2020·MedRxiv : the Preprint Server for Health Sciences·Sameh N. SalehR. J. Medford

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