Child and Family Perspectives on Adjustment to and Coping With Pediatric Inflammatory Bowel Disease.

Journal of Pediatric Gastroenterology and Nutrition
Molly C EasterlinRebecca Dudovitz

Abstract

Children with inflammatory bowel disease (IBD) are at increased risk for poor mental health. The etiology of this risk is not clear, though may be related to the disease, its treatment, and/or the experience of these. We sought to describe the challenges that children with IBD and their families face in living with a chronic condition and undergoing repeated intravenous infusions; and identify coping mechanisms to understand how medical systems may support resilience. Semistructured qualitative interviews with 18 patient-guardian dyads at a tertiary outpatient infusion center, explored feelings related to IBD, the infusion process, and coping. Interviews were recorded, transcribed, and analyzed in ATLAS.ti. Two coders identified themes; developed a codebook and coded transcripts using the constant comparative method; and described themes/patterns. Participants identified challenges related to IBD (unpredictable nature, disrupted normalcy, treatment decisions, managing relationships, life transitions) and a subset of challenges related to the infusion procedure (anxiety of unknown, managing pain/anxiety during IV placement, logistics). Participants coped through social support, cognitive strategies (positive attitude) and/or beh...Continue Reading

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Citations

May 27, 2020·Maternal and Child Health Journal·Molly C EasterlinRebecca Dudovitz
Jan 29, 2021·Pediatric Gastroenterology, Hepatology & Nutrition·Shaun Siong Chung HoAndrew Stewart Day
Jun 7, 2021·Journal of Pediatric Gastroenterology and Nutrition·Hillary MooreRonen Stein

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