Children with congenital limb deficiency in Norway: issues related to school life and health-related quality of life. A cross-sectional study

Disability and Rehabilitation
Heidi JohansenInger-Lise Andresen

Abstract

To describe clinical features, issues related to school life and health-related quality of life (HRQOL) for children with congenital limb deficiency (CLD) and compare these children to Norwegian school children on HRQOL. Cross-sectional study. In 2010, a postal questionnaire, designed for this study and the Paediatric Quality of Life Inventory (PedsQL), was sent to 154 eligible parents of children with CLD, aged 6-18 years and registered at TRS National Resource Centre for Rare Disorders in Norway. Response rate 44% (n = 67), median age 11 years, 42% were girls. Of the total group, 46 had unilateral upper limb deficiency (UULD) and 21 had multiple/lower limb deficiency (MLD/LLD). The most common UULD was below-elbow deficiency, of these, 65% used grip-improving devices, and 35% used prostheses. Children with UULD-reported PedsQL score similar to Norwegian schoolchildren (NSC). The MLD/LLD group was heterogeneous; most had below-elbow/knee deficiency. In this group, PedsQL scores were reduced for physical and social functioning compared with NSC. Compared with children with UULD, more children with MLD/LLD were restricted in participation because of pain and fewer participated in physical education with peers. Most children with...Continue Reading

References

Dec 1, 1991·Statistics in Medicine·D G Altman
Jun 16, 2000·Prosthetics and Orthotics International·A M BoonstraW H Eisma
Jul 13, 2000·Prosthetics and Orthotics International·W M VannahB J Oxley
Jul 31, 2004·BMJ : British Medical Journal·M ParkerA Kent
Nov 3, 2006·The Journal of Bone and Joint Surgery. American Volume·Michelle A JamesFred Molitor
Sep 14, 2007·Prosthetics and Orthotics International·Abdel Fattah Al-Worikat, Walid Dameh
Jan 8, 2008·Developmental Medicine and Child Neurology·Stacey HendersonPeter Rosenbaum
Mar 1, 2007·Disability and Rehabilitation. Assistive Technology·Elaine Biddiss, Tom Chau
May 6, 2010·Disability and Rehabilitation·Sharada WeirEllen Mackenzie
Aug 14, 2010·Prosthetics and Orthotics International·Anka MichielsenMarjolijn Ketelaar
May 11, 2011·American Journal of Medical Genetics. Part a·Nina B GoldLewis B Holmes
May 24, 2011·The Journal of Hand Surgery·Eeva KoskimiesYrjänä Nietosvaara
May 25, 2011·Journal of Rehabilitation Medicine·Anka MichielsenMarjolijn Ketelaar
Jun 30, 2011·The Journal of Hand Surgery, European Volume·G-B AnderssonA Nachemson
Feb 1, 2012·Archives of Physical Medicine and Rehabilitation·Monique S ArdonRuud W Selles
Apr 3, 2012·Archives of Physical Medicine and Rehabilitation·Monique S ArdonWim G Janssen
Sep 20, 2012·Journal of Rehabilitation Medicine·Ingrid G M de JongCorry K van der Sluis
Nov 21, 2014·The Journal of Bone and Joint Surgery. American Volume·Johanna SyvänenIlkka Helenius
Feb 14, 2015·Journal of Rehabilitation Medicine·Ecaterina VasluianCorry K van der Sluis

❮ Previous
Next ❯

Citations

Jun 2, 2021·Paediatric and Perinatal Epidemiology·Jie ZhangLei Jin

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.