Childrens' and young adults' perspectives of having a parent with dementia diagnosis: A scoping review.

Dementia
Åke GrundbergÅsa G Craftman

Abstract

Dementia is a key health issue worldwide. In Sweden, as in other European countries, most persons with dementia live in domestic settings and are often cared for by their family members. This scoping review aims to describe the perspectives of children and young adults with a parent diagnosed with dementia. Young family members may be alone and without support despite their high level of care burden. Three electronic databases (PubMed, Web of Science and PsycINFO) were used to search for English-language articles focusing on children and young adults between the ages of 6 and 34 who have a parent diagnosed with dementia. A thematic synthesis of the included articles was performed. Sixteen original published qualitative studies were identified. These studies were categorised based on information about the authors, year of publication, study location, participants, aim of the study, data collection, analysis and main findings. Five main analytical themes were identified: (1) children and young adults identify changes in their parents' behaviour and personality, (2) children and young adults experience changed roles and relationships within the family, (3) children and young adults need to cope with an uncertain future, (4) childr...Continue Reading

References

Jul 12, 2008·BMC Medical Research Methodology·James Thomas, Angela Harden
Apr 24, 2009·American Journal of Alzheimer's Disease and Other Dementias·Brigg B NoyesByron D Bair
Jan 14, 2010·International Journal of Geriatric Psychiatry·Tor Atle RosnessKnut Engedal
Aug 6, 2010·Aging & Mental Health·Emma SvanbergAimee Spector
Sep 22, 2010·Implementation Science : IS·Danielle LevacKelly K O'Brien
Oct 20, 2010·International Journal of Geriatric Psychiatry·Deliane van VlietFrans R J Verhey
Dec 20, 2012·The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques·Katherine R NicholsTiffany W Chow
Apr 2, 2013·Journal of the American Medical Directors Association·Adrienne Withall
Nov 16, 2013·International Psychogeriatrics·Joany K MillenaarMarjolein E de Vugt
Feb 24, 2015·Health & Social Care in the Community·Sarah KnowlesCaroline Sanders
Apr 18, 2015·Dementia·Kesstan Blandin, Renee Pepin
Jun 11, 2015·Journal of Multidisciplinary Healthcare·Aud JohannessenKirsten Thorsen
Jul 3, 2015·International Journal of Evidence-based Healthcare·Micah D J PetersCassia Baldini Soares
Nov 14, 2015·International Psychogeriatrics·Karen HutchinsonSusan Kurrle
Jul 14, 2016·Internal Medicine Journal·B Draper, A Withall
Dec 7, 2016·Systematic Reviews·Mourad OuzzaniAhmed Elmagarmid
Jun 18, 2017·Aging & Mental Health·Andrea MayrhoferClaire Goodman
Aug 3, 2017·British Journal of Community Nursing·Sally Sprung, Michelle Laing
Aug 28, 2018·British Educational Research Journal·Pat Sikes, Melanie Hall
Sep 5, 2018·Annals of Internal Medicine·Andrea C TriccoSharon E Straus
Nov 20, 2018·Health Psychology Open·Tamsyn HawkenJulie Barnett
Feb 2, 2019·Continuum : Lifelong Learning in Neurology·Mario F Mendez

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.