Children's experience of living with a craniofacial condition: perspectives of children and parents

Clinical Child Psychology and Psychiatry
Rachel M Roberts, Rosalyn Shute

Abstract

This is the first study to examine the range of experiences of children living with a wide range of craniofacial anomalies (CFAs), from the perspectives of children and parents. We interviewed 26 young people and 28 parents about both stressors and positive aspects for young people of living with a CFA. Thematic analysis revealed four major stress-related themes (self-acceptance, responses of others, disabilities and impairments, and treatment). Positive themes included personal qualities and support. Psychological theories often applied to those with CFAs relate to attractiveness, stigma and teasing, but the present findings suggest that these are not as useful as the conceptualization of CFAs as chronic conditions which influence adaptive tasks. Implications for clinical practice are discussed.

References

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Citations

Oct 4, 2012·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Mohammad Owaise SharifStephanie Tierney
Mar 15, 2014·American Journal of Public Health·Hillary L BroderLacey Sischo
Feb 14, 2012·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·R M Roberts, J L Mathias
Jul 10, 2012·Journal of Plastic, Reconstructive & Aesthetic Surgery : JPRAS·Ornella MasnariClemens Schiestl
Mar 18, 2016·Psychology, Health & Medicine·Rachel M RobertsAmanda Gierasch
Sep 30, 2015·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Alice W PopeAndrea J Bergman
Jul 11, 2014·Clinical Child Psychology and Psychiatry·Frøydis Tevik, Kristin Billaud Feragen
Feb 4, 2016·Journal of Health Psychology·Imamatu Muhammad Wali, Krishna Regmi
Dec 22, 2016·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Natasha M WickertAnne F Klassen
Apr 24, 2019·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Anita MyhreKristin Billaud Feragen
May 31, 2019·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Kristin Billaud FeragenNicola Marie Stock
Dec 11, 2019·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Jill NybergChristina Havstam
Aug 4, 2020·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Senem Zeytinoğlu SaydamMemet Özek
Sep 14, 2019·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Eric RiklinRachel A Annunziato
Aug 21, 2019·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Kristin Billaud FeragenBernt J Due-Tønnessen
Nov 12, 2013·Journal of Developmental and Behavioral Pediatrics : JDBP·Mary A KhetaniMartha M Werler
Oct 31, 2020·The Journal of Hand Surgery, European Volume·Lucy McDougallAnthony Penington

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