PMID: 9188350Mar 1, 1997Paper

Chronic illness: the importance of support for families caring for a child with cystic fibrosis

Journal of Clinical Nursing
I T Coyne

Abstract

The effect of chronic life-threatening illness on the family is one of the major problems confronting the health-care system today. Increasingly, parents have the major responsibility for the daily management of their child's condition. There is evidence that many parents lack the professional help and support which could ameliorate some of their problems. It is important that nurses have an understanding of how families cope with the burden of caring for a chronically ill child. Health professionals need clear guidelines on how to support these families in their role as primary care-givers. This paper examines how families of children with cystic fibrosis adapt to the illness in order to provide indicators for nursing practice and to enhance the care and support provided for these families. Effective coping strategies include: assigning meaning to the illness, sharing the burden, denial of diagnosis and incorporating therapy in a schedule.

Citations

Jul 9, 2002·International Journal of Nursing Studies·Susan Kirk, Caroline Glendinning
May 15, 2002·The American Journal of Nursing·Debra D Meleski
Sep 19, 2002·Journal for Specialists in Pediatric Nursing : JSPN·Janice McDougal
Jun 2, 2001·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·H L Broder
Apr 24, 2004·Child: Care, Health and Development·M Lewis
Nov 28, 2013·Pediatric Blood & Cancer·Karin LindvallErik Berntorp
Jun 1, 2011·Child: Care, Health and Development·P NelsonA-L Caress
Jul 17, 2007·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Kimberly McGuffieWalter M Robinson
Dec 23, 2014·Respiratory Medicine·Moran LavieDaphna Vilozni

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