Circumstances surrounding the deaths of hospitalized children: opportunities for pediatric palliative care

Pediatrics
Brian S CarterJames A Whitlock

Abstract

Little is known regarding the assessment and treatment of symptoms during end-of-life (EOL) care for children. This study was conducted to describe the circumstances surrounding the deaths of hospitalized terminally ill children, especially pain and symptom management by the multidisciplinary pediatric care team. Patients in the neonatal intensive care unit, pediatric critical care unit, or general pediatric units of Vanderbilt Children's Hospital who were hospitalized at the time of death, between July 1, 2000, and June 30, 2001, were identified. Children eligible for the survey had received inpatient EOL care at the hospital for at least 24 hours before death. A retrospective medical record review was completed to describe documentation of care for these children and their families during the last 72 hours of life. Records of children who had received inpatient EOL care were identified (n = 105). A majority (87%) of children were in an intensive care setting at the time of death. Most deaths occurred in the pediatric critical care unit (56%), followed by the neonatal intensive care unit (31%). Pain medication was received by 90% of the children in the last 72 hours of life, and 55% received additional comfort care measures. T...Continue Reading

Citations

Nov 7, 2012·Pediatric Research·Johanna C HartemanLinda S de Vries
Mar 1, 2012·Death Studies·Shu Ching Yang, Sih-Yi Lai
Dec 1, 2012·Journal of Social Work in End-of-life & Palliative Care·Ardith DoorenbosRoss Hays
Feb 28, 2006·Journal of Palliative Medicine·Pamela S HindsJoanne Wolfe
May 3, 2007·Journal of Palliative Medicine·Brian Scott Carter, Scott Osborn Guthrie
Sep 7, 2007·Journal of Palliative Medicine·Debra BrandonJoshua Thorpe
Jul 6, 2010·Journal of Palliative Medicine·Franca BeniniAnna Ferrante
Jan 6, 2012·Journal of Palliative Medicine·René VollenbroichMonika Führer
Mar 6, 2013·Journal of Palliative Medicine·Neelam GuptaAlison Shefler
May 2, 2007·Journal of Medical Ethics·Padmanabhan RamnarayanChristine Pierce
May 12, 2010·Pediatrics·Anthony D SlonimSamir S Shah
Aug 3, 2014·Pediatrics in Review·Tammy I KangChris Feudtner
Jun 22, 2014·Archives of Disease in Childhood·Joanna LaddieMyra Bluebond-Langner
Aug 1, 2014·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Renee BossRoss Hays
Apr 25, 2013·Journal of Pediatric Hematology/oncology·Amii C SteeleCynthia A Gerhardt
Sep 9, 2005·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Marcia Levetown
Feb 4, 2009·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Kristine M PleacherSusan L Bratton
Sep 7, 2013·Journal of Palliative Medicine·Negar ChavoshiHarold Siden
May 23, 2015·Palliative & Supportive Care·René VollenbroichMonika Führer
Dec 17, 2015·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Linda KeeleUNKNOWN Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Resear
Nov 28, 2012·Annales Françaises D'anesthèsie Et De Rèanimation·F BordetE Javouhey
Sep 29, 2012·Journal of Pain and Symptom Management·Michael D RuppeWynne E Morrison
Jul 20, 2010·Current Problems in Pediatric and Adolescent Health Care·Jeffrey C Klick, Julie Hauer
Feb 24, 2009·Journal of Pediatric Health Care : Official Publication of National Association of Pediatric Nurse Associates & Practitioners·Rosemary A HubbleChristopher L Hubble
Apr 29, 2008·Clinical Pediatric Emergency Medicine·Kelly Nicole Michelson, David M Steinhorn
Jun 10, 2008·Journal of Critical Care·Orit Manor-ShulmanChristopher S Parshuram
Oct 16, 2007·Pediatric Clinics of North America·Stefan J Friedrichsdorf, Tammy I Kang
Oct 16, 2007·Pediatric Clinics of North America·Gina Santucci, Jennifer W Mack
Aug 21, 2007·Lancet·Stephen LibenJoanne Wolfe
Jul 4, 2007·Journal of Pediatric Health Care : Official Publication of National Association of Pediatric Nurse Associates & Practitioners·Peggy Ward-SmithChristopher L Hubble
Jun 27, 2006·Child and Adolescent Psychiatric Clinics of North America·Nancy HuttonJoanne M Hilden
Jun 27, 2006·Child and Adolescent Psychiatric Clinics of North America·Frederick J StoddardAnnah N Abrams
Jun 27, 2006·Child and Adolescent Psychiatric Clinics of North America·Renée McCulloch, John J Collins
Jun 27, 2006·Child and Adolescent Psychiatric Clinics of North America·Brian S CarterKathryn L Weise
Dec 14, 2005·Critical Care Nursing Clinics of North America·Beverley Copnell
Aug 27, 2009·Nursing in Critical Care·Rebecca SandsAsrar Rashid
Oct 28, 2008·Journal of Hospital Medicine : an Official Publication of the Society of Hospital Medicine·R N Caskey, M M Davis
Oct 23, 2015·Journal of Perinatology : Official Journal of the California Perinatal Association·L GartenC Bührer
Sep 29, 2011·Journal for Specialists in Pediatric Nursing : JSPN·Sue PeterNick Santamaria
Nov 23, 2005·Current Problems in Pediatric and Adolescent Health Care·Barbara SourkesCameron Sunde
Sep 4, 2015·Critical Care Nursing Clinics of North America·Kevin MaddenChristopher Collura
Aug 11, 2015·Current Opinion in Supportive and Palliative Care·Finella CraigMyra Bluebond-Langner

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

© 2021 Meta ULC. All rights reserved