PMID: 8957953Nov 1, 1996Paper

Clinic audit for long-term survivors of childhood cancer

Archives of Disease in Childhood
C EiserC Donovan

Abstract

Follow up for survivors of childhood cancer is considered essential in order to document any continuing impact on growth, fertility and other systems, as well as provide appropriate care and information to individuals themselves. Appropriate follow up needs to take into account the survivors' own views about reasons for attendance and perceived satisfaction with the services provided. Information was sought from 93 survivors (more than five years from diagnosis) and 68 of their parents regarding current attendance, understanding of the purpose of the clinic and satisfaction, and future preferences. Patients' main reasons for attending were to gain reassurance that they were well and information about the disease. There were some discrepancies between the types of information patients would like from clinic attendance and what they remembered being given. Parents were more positive than patients. Our data suggest that (i) knowledge in survivors is poor and (ii) it may be possible to define a subgroup for whom less frequent follow up is appropriate. A key component of care must involve education of patients, both about their past and the implications for future health.

References

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Jan 1, 1994·Archives of Disease in Childhood·C Eiser, T Havermans

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Citations

Jul 24, 2008·Journal of Cancer Survivorship : Research and Practice·Christine EiserUNKNOWN Late Effects Group, Sheffield (LEGS)
Jun 8, 2013·British Dental Journal·F GilchristZ Marshman
Jan 1, 1997·International Journal of Behavioral Medicine·C EiserJ R Eiser
Sep 29, 2001·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·F Gibson, L Soanes
Mar 31, 2009·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·G MichelUNKNOWN Late Effects Group Sheffield
Jun 5, 2007·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Helen AslettFaith Gibson
Sep 24, 2004·Psycho-oncology·Brad J ZebrackLonnie K Zeltzer
Aug 1, 2012·Pediatric Blood & Cancer·Morag HeirsRobert Phillips
May 12, 2010·Pediatrics International : Official Journal of the Japan Pediatric Society·Naoko MaedaMasahito Tsurusawa
Dec 8, 2004·Patient Education and Counseling·Kate AbsolomHelena Davies
Sep 23, 2006·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Christine EiserHelena Davies
Jun 9, 2006·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Kate AbsolomChristine Eiser
Jan 13, 2006·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·H L CurryJ R Mann
Nov 9, 2005·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Emily A EarleChristine Eiser
Jun 6, 2006·The Lancet Oncology·Roderick SkinnerUNKNOWN UK Children's Cancer Study Group Late Effects Group
Oct 27, 2016·European Journal of Cancer Care·G MichelUNKNOWN Swiss Paediatric Oncology Group
Jan 31, 2017·European Journal of Cancer Care·J VetschUNKNOWN Swiss Paediatric Oncology Group
Dec 22, 2005·Pediatric Blood & Cancer·Kevin C Oeffinger, W Hamish B Wallace
Aug 21, 2018·Current Opinion in Pediatrics·Ailin Song, Jonathan D Fish

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