Clinical relationships tested by iatrogenicity: the case of haemophiliac patients faced with the epidemic of transfusional AIDS

Social Science & Medicine
Emmanuelle Fillion

Abstract

After being victims of a serious iatrogenous damage, what kind of relationship can patients rebuild with the world of medicine? In this article, I examine this question in terms of the contaminated blood affair in France. Using a qualitative study of haemophiliac patients and their families as a base, I looked at the changes in their modes of commitment to medicine, from the period preceding contamination with AIDS through blood transfusion, until the present day. It would seem that the experience of iatrogenous injustice was at the root of a major reconfiguration: all of the patients looked back over their trajectories, examined their relationship with the medical world and changed their positions, but without necessarily drawing the same conclusions or taking the same stances. This article looks at the change from relationships essentially based on cooperation to relationships that are more negotiated. It also shows the current diversity in forms of commitment: they are the fruit of critical work, carried out by patients and their families, which reassesses both the cognitive and moral bases of medical legitimacy. The analysis of the reconfiguration of the relationships that haemophiliac patients have had with the medical wor...Continue Reading

References

Jun 5, 1998·International Journal of Technology Assessment in Health Care·K De Ville
Sep 15, 2001·Social Science & Medicine·S KeshavjeeA Kleinman
Aug 28, 2003·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Emmanuelle Fillion
Jul 28, 2005·Social Science & Medicine·Janine Barbot

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Citations

Aug 31, 2018·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Erin McCabeDouglas P Gross
Apr 4, 2020·Haemophilia : the Official Journal of the World Federation of Hemophilia·Mallika Sekhar, Sushrut Jadhav

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