Co-building a patient-oriented research curriculum in Canada

Research Involvement and Engagement
Tim BellNicolas Fernandez

Abstract

Foundations in Patient-Oriented Research is a course designed and piloted in Canada to help patients, researchers, health care professionals and health system decision-makers gain an introductory understanding of patient-oriented research, the research enterprise, and how to work in a team. The course curriculum was co-developed by a diverse group of people with different lived experiences and relevant expertise. The course is meant to be delivered in a 'co-learning format' with classes comprised of all the above stakeholder groups learning together. The purpose of this study was to explore the experiences of the project leaders, developers, facilitators and patient co-facilitators who were involved in the process of co-developing, piloting and revising the curriculum.Our findings suggest that co-developing a patient-oriented research curriculum increases its quality, uptake and credibility. The co-development process not only resulted in training that benefited the target learners, but it provided valuable learning experiences about patient-oriented research for the project leaders, developers, facilitators and patient co-facilitators. These findings and the resulting recommendations may provide guidance for other learning and...Continue Reading

References

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Aug 31, 2011·CMAJ : Canadian Medical Association Journal = Journal De L'Association Medicale Canadienne·Roger Collier
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Citations

Jan 31, 2020·Disability and Rehabilitation·Miriam GonzalezKeiko Shikako-Thomas
Aug 12, 2020·Health Research Policy and Systems·Melanie King RosarioDean Eurich
Jun 19, 2020·Research Involvement and Engagement·Dirk-Wouter SmitsMarjolijn Ketelaar
Jul 17, 2020·Research Involvement and Engagement·Lidewij Eva VatHolly Etchegary
Feb 6, 2020·Research Involvement and Engagement·Chelsea A PelletierGloria Fox
Jan 12, 2021·Canadian Journal of Kidney Health and Disease·Leah GetchellRuth Sapir-Pichhadze
Mar 30, 2021·COPD·Emilie MichalovicDennis Jensen
Apr 25, 2021·Annals of Epidemiology·Jennifer SalernoEdward S Peters
May 12, 2021·Research Involvement and Engagement·Colin MacarthurNicola L Jones
Jul 1, 2021·Research Involvement and Engagement·Pooja SainiMark Gabbay
Oct 12, 2021·Research Involvement and Engagement·Elaine ZibrowskiGary Groot

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