Co-Designing a Collaborative Chronic Care Network (C3N) for Inflammatory Bowel Disease: Development of Methods

JMIR Human Factors
Michael SeidPeter A Margolis

Abstract

Our health care system fails to deliver necessary results, and incremental system improvements will not deliver needed change. Learning health systems (LHSs) are seen as a means to accelerate outcomes, improve care delivery, and further clinical research; yet, few such systems exist. We describe the process of codesigning, with all relevant stakeholders, an approach for creating a collaborative chronic care network (C3N), a peer-produced networked LHS. The objective of this study was to report the methods used, with a diverse group of stakeholders, to translate the idea of a C3N to a set of actionable next steps. The setting was ImproveCareNow, an improvement network for pediatric inflammatory bowel disease. In collaboration with patients and families, clinicians, researchers, social scientists, technologists, and designers, C3N leaders used a modified idealized design process to develop a design for a C3N. Over 100 people participated in the design process that resulted in (1) an overall concept design for the ImproveCareNow C3N, (2) a logic model for bringing about this system, and (3) 13 potential innovations likely to increase awareness and agency, make it easier to collect and share information, and to enhance collaboratio...Continue Reading

References

Jan 8, 1999·The Milbank Quarterly·M A SchusterR H Brook
Jan 31, 2002·Health Affairs·E H WagnerA Bonomi
Oct 12, 2007·The New England Journal of Medicine·Rita Mangione-SmithElizabeth A McGlynn
Jul 6, 2010·Inflammatory Bowel Diseases·Wallace CrandallPeter Margolis
Mar 11, 2011·Mayo Clinic Proceedings·Marie T Brown, Jennifer K Bussell
Jun 14, 2013·Pediatrics·Carolyn M ClancyMarlene Miller
Jun 14, 2013·Pediatrics·Peter A MargolisMichael Seid
Oct 31, 2013·JMIR Research Protocols·David ForeMichael Seid
Jan 22, 2014·JAMA Pediatrics·Michael SeidLisa Opipari-Arrigan
Sep 18, 2015·BMJ Quality & Safety·Maren BataldenHans Hartung

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Citations

Jun 1, 2019·Current Treatment Options in Pediatrics·Michael TeraoMaitreya Coffey
Jan 20, 2021·Journal of Medical Internet Research·Andreas HagerCarolina Wannheden
Nov 15, 2019·Journal of Pediatric Hematology/oncology·Katherine E BatesGary L Freed
Apr 24, 2021·Learning Health Systems·David M HartleyMichael Seid
Apr 28, 2020·Biology of Blood and Marrow Transplantation : Journal of the American Society for Blood and Marrow Transplantation·Monica ArduraUNKNOWN Transplant-Associated Learning Network Team (TALNT)
Apr 25, 2020·Clinical Diabetes : a Publication of the American Diabetes Association·Guy Todd AlonsoJoyce Lee
Aug 24, 2021·Clinical Diabetes : a Publication of the American Diabetes Association·Olivia Z B GinnardDaniel J DeSalvo

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Software Mentioned

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