Co-research with older people with dementia: experience and reflections

Journal of Mental Health
Denise Tanner

Abstract

There is growing evidence that people with dementia want to participate in research and benefit from their involvement. However, little attention has been given to date to the potential to involve people with dementia as co-researchers, not just participants. The paper discusses the implications for people with dementia of involvement in research as co-researchers. Older people with dementia participated in planning the research methods, conducting interviews and making sense of the findings. The project found that it is possible to involve older people with dementia in a meaningful way in research processes and that both co-researchers and participants can benefit significantly from their participation. The project has wider implications for the development of participatory research with people with dementia and for interventions based on peer support.

References

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Citations

Sep 17, 2016·International Journal of Geriatric Psychiatry·Claudio Di LoritoMartin Orrell
Dec 1, 2017·International Journal of Environmental Research and Public Health·Imke Schilling, Ansgar Gerhardus
May 17, 2018·Qualitative Health Research·Charlotte L ClarkeToby Williamson
Oct 31, 2018·Dementia·Jennifer BethellKatherine S McGilton
Jan 31, 2020·Health & Social Care in the Community·Robert J Hagan
Oct 2, 2019·Cost Effectiveness and Resource Allocation : C/E·Leah RandMark Sheehan
Apr 24, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jacob WaiteGeorgina Charlesworth
Jun 4, 2019·Research in Gerontological Nursing·Adebusola A Adekoya, Lorna Guse
Jun 18, 2019·Research Involvement and Engagement·Tracey McConnellPaul Best
Aug 7, 2019·Dementia·Jo Moriarty
Aug 24, 2019·Journal of Community Psychology·Leah LevacOriana Vaccarino
Sep 19, 2020·Research Involvement and Engagement·Claire LudwigDawn Stacey
Apr 3, 2018·Infection Control and Hospital Epidemiology : the Official Journal of the Society of Hospital Epidemiologists of America·Ann Dadich, Mary Wyer
Aug 31, 2020·Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen·Kim Isabel RathjenAnsgar Gerhardus
Dec 6, 2020·International Journal of Environmental Research and Public Health·Margaret von FaberSuzan van der Pas
Jun 5, 2021·Research Involvement and Engagement·Troels Kjærskov HansenMerete Gregersen
Aug 3, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jean Daly LynnSuzanne Martin
Oct 7, 2021·International Journal of Geriatric Psychiatry·Vanessa LawrenceJohn Keady

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