Communicating and disseminating research findings to study participants: Formative assessment of participant and researcher expectations and preferences

Journal of Clinical and Translational Science
Cathy L MelvinTeresa Kelechi

Abstract

Translating research findings into practice requires understanding how to meet communication and dissemination needs and preferences of intended audiences including past research participants (PSPs) who want, but seldom receive, information on research findings during or after participating in research studies. Most researchers want to let others, including PSP, know about their findings but lack knowledge about how to effectively communicate findings to a lay audience. We designed a two-phase, mixed methods pilot study to understand experiences, expectations, concerns, preferences, and capacities of researchers and PSP in two age groups (adolescents/young adults (AYA) or older adults) and to test communication prototypes for sharing, receiving, and using information on research study findings. PSP and researchers agreed that sharing study findings should happen and that doing so could improve participant recruitment and enrollment, use of research findings to improve health and health-care delivery, and build community support for research. Some differences and similarities in communication preferences and message format were identified between PSP groups, reinforcing the best practice of customizing communication channel and ...Continue Reading

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Citations

Jul 23, 2020·Journal of Clinical and Translational Science·Kathleen R Stevens, Jonathan N Tobin
Apr 7, 2021·Translational Behavioral Medicine·Jennifer Cunningham-ErvesStephania T Miller

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Software Mentioned

REDCap©
Mail Chimp
Yammer
ResearchMatch
Research Electronic Data Capture ( REDCap© )

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