Community-engaged research: cancer survivors as community researchers

Journal of Empirical Research on Human Research Ethics : JERHRE
Maghboeba Mosavel, Kimberly D Sanders

Abstract

The personal rewards and challenges experienced by community researchers are not well explored. Training laypersons to be engaged in some or all aspects of community-engaged research is becoming more common, highlighting the need to understand the challenges associated with this role. The complexities of this role are magnified when the layperson has multiple identities of overlap with the research participant. In this brief report, we explore the rewards and challenges reported by 8 cancer survivors and 2 cancer caregivers who conducted interviews with 32 other survivors, caregivers, and health care professionals. We report specifically on data from their exit interviews regarding the experience of being a community researcher conducting research on a subject matter that was very personal. Overall, being a community researcher was a rewarding experience that allowed them to reflect critically on their own personal path and cancer experiences. Importantly, this role provided them with insights into cancer and other disparities in their community beyond their own situation.

References

May 13, 1999·Public Health Nursing·L A RomanA L Shoemaker
Jul 22, 2004·Addiction·Sarah E ZemoreLyndsay N Ammon
Mar 6, 2007·Journal of Health Care for the Poor and Underserved·Barbra BeckMarie Wolff
Dec 14, 2007·Health Education & Behavior : the Official Publication of the Society for Public Health Education·Suzanne ChristopherAlma Knows His Gun McCormick
Mar 17, 2010·The American Journal of Bioethics : AJOB·Christian Simon, Maghboeba Mosavel
Nov 9, 2010·Journal of Psychosocial Oncology·Maghboeba Mosavel, Kimberly D Sanders
May 9, 2012·Journal of Empirical Research on Human Research Ethics : JERHRE·Emily E AndersonLainie Friedman Ross
Apr 4, 2014·Hispanic Health Care International : the Official Journal of the National Association of Hispanic Nurses·DeAnne K Hilfinger MessiasDaisy Morales-Campos

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