Comparison of patient and family assessments of quality of life of terminally ill cancer patients in Japan

Psycho-oncology
Kazuho HisamuraAkihiko Mikami

Abstract

This study examined the extent and the nature of agreement on health-related quality of life (QOL) assessments between terminally ill cancer patients and their primary family caregivers in Japan, using a multidimensional QOL instrument including psychosocial and spiritual domains. The Functional Assessment of Chronic Illness Therapy-Spiritual well-being questionnaire was used to assess patients' QOL. Study subjects were inpatients of a palliative care unit (PCU), outpatients who applied for admission to the PCU, and their primary family caregivers. QOL ratings were obtained from 102 of 197 eligible patient-caregiver dyads. A moderate level of patient-family concordance on patients' overall QOL as well as families' underestimation of patients' QOL were observed. Families reported on observable domains of patients' QOL more reliably and assessed subjective aspects, such as psychospiritual concerns less accurately. Families tended to underrate the patients' social aspect of QOL, whereas most patients gave the highest rating on support from their families. The spiritual domain, particularly regarding faith, showed the least agreement. The size of the systematic bias between patient and family assessments on the patients' QOL was mo...Continue Reading

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Citations

Mar 16, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Jessica K Roydhouse, Ira B Wilson
Feb 10, 2016·Journal of Palliative Care·Radka BužgováLucie Sikorová
Jul 2, 2019·The American Journal of Hospice & Palliative Care·Fumio ShakuShuichiro Maruoka
Sep 20, 2017·Journal of Pain and Symptom Management·Everlien de GraafSaskia C C M Teunissen

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