Complexity in non-pharmacological caregiving activities at the end of life: an international qualitative study.

PLoS Medicine
Olav LindqvistOPCARE9 Group

Abstract

In late-stage palliative cancer care, relief of distress and optimized well-being become primary treatment goals. Great strides have been made in improving and researching pharmacological treatments for symptom relief; however, little systematic knowledge exists about the range of non-pharmacological caregiving activities (NPCAs) staff use in the last days of a patient's life. Within a European Commission Seventh Framework Programme project to optimize research and clinical care in the last days of life for patients with cancer, OPCARE9, we used a free-listing technique to identify the variety of NPCAs performed in the last days of life. Palliative care staff at 16 units in nine countries listed in detail NPCAs they performed over several weeks. In total, 914 statements were analyzed in relation to (a) the character of the statement and (b) the recipient of the NPCA. A substantial portion of NPCAs addressed bodily care and contact with patients and family members, with refraining from bodily care also described as a purposeful caregiving activity. Several forms for communication were described; information and advice was at one end of a continuum, and communicating through nonverbal presence and bodily contact at the other. Rit...Continue Reading

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Citations

Jul 18, 2012·Current Opinion in Supportive and Palliative Care·Carl Johan FürstCarol Tishelman
Jan 20, 2016·BMJ Supportive & Palliative Care·Olav LindqvistUNKNOWN OPCARE9 team in Sweden
Nov 14, 2013·Journal of Gerontological Nursing·David EdvardssonKristina Edvardsson
Apr 18, 2013·International Journal of Older People Nursing·David EdvardssonPer-Olof Sandman
Jun 30, 2015·Social Science & Medicine·Olav Lindqvist, Carol Tishelman
Apr 5, 2013·PLoS Medicine·Wei GaoUNKNOWN GUIDE_Care project
Jan 31, 2014·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Joakim Ohlén
Feb 6, 2017·Home Healthcare Now·Elisha M Martin, Thomas W Barkley
Jan 27, 2016·The American Journal of Hospice & Palliative Care·Oksana K NiedzielskiKatherine M Sellen
Jan 26, 2016·International Journal of Palliative Nursing·Carina Lundh HagelinMaria Browall
Mar 6, 2012·PLoS Medicine·UNKNOWN PLoS Medicine Editors
Apr 26, 2014·Palliative & Supportive Care·Cecilia Håkanson, Joakim Ohlén
Jun 12, 2013·Palliative & Supportive Care·Sofia C ZambranoGregory B Crawford
Dec 3, 2015·Nursing·Elisha M Martin, Thomas W Barkley
May 15, 2020·Holistic Nursing Practice·Zohreh GhezelsefliEesa Mohammadi
May 8, 2020·Nursing Ethics·Bodil HolmbergJane Österlind
Feb 9, 2019·BMC Palliative Care·Sofia TavemarkKarin Blomberg
Aug 22, 2017·The American Journal of Hospice & Palliative Care·M RenzF Strasser
Jun 11, 2018·BMC Palliative Care·Laurence Jee Peng Leong, Gregory Brian Crawford
Mar 20, 2019·Scandinavian Journal of Caring Sciences·Bodil HolmbergJane Österlind
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Jan 7, 2018·Journal of Pain and Symptom Management·Sofia AnderssonMargareta Brännström
Apr 15, 2021·Asia-Pacific Journal of Oncology Nursing·Mikako NotsuToshiaki Takahashi

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Software Mentioned

OPCARE9
NVivo

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