Computerized symptom and quality-of-life assessment for patients with cancer part I: development and pilot testing

Oncology Nursing Forum
Donna L BerryStephanie Martin

Abstract

To develop and test an innovative computerized symptom and quality-of-life (QOL) assessment for patients with cancer who are evaluated for and treated with radiation therapy. Descriptive, longitudinal prototype development and cross-sectional clinical data. Department of radiation oncology in an urban, academic medical center. 101 outpatients who were evaluated for radiation therapy, able to communicate in English (or through one of many interpreters available at the University of Washington), and competent to understand the study information and give informed consent. Six clinicians caring for the patients in the sample were enrolled. Iterative prototype development was conducted using a standing focus group of clinicians. The software was developed based on survey markup language and implemented in a wireless, Web-based format. Patient participants completed the computerized assessment prior to consultation with the radiation physician. Graphical output pages with flagged areas of symptom distress or troublesome QOL issues were made available to consulting physicians and nurses. Pain intensity, symptoms, QOL, and demographics. Computerized versions of a 0 to 10 Pain Intensity Numerical Scale (PINS), Symptom Distress Scale, an...Continue Reading

References

Oct 1, 1978·Cancer Nursing·R McCorkle, K Young
Nov 1, 1987·Seminars in Oncology Nursing·R McCorkle
May 1, 1984·Nursing Research·D B McGuire
Jan 1, 1983·Social Science & Medicine·R McCorkle, J Quint-Benoliel
Aug 1, 1995·Journal of Pain and Symptom Management·L F Degner, J A Sloan
Jun 1, 1994·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·R K PortenoyW Hoskins
Jan 1, 1994·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·R K PortenoyL Norton
Jan 1, 1995·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·D Razavi, N Delvaux
Nov 1, 1995·Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates·M HeitkemperE F Bond
Oct 18, 2000·Seminars in Radiation Oncology·C S Cleeland
Apr 30, 2002·Oncology Nursing Forum·Mary E RopkaGail Mallory
May 1, 2002·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Mark N Levine, Patricia A Ganz
May 31, 2002·Western Journal of Nursing Research·Pamela S HindsDeo Kumar Srivastava
Jun 26, 2002·Seminars in Oncology·David CellaKimberly Webster
Dec 17, 2002·JAMA : the Journal of the American Medical Association·Symone B DetmarNeil K Aaronson
Dec 25, 2002·JAMA : the Journal of the American Medical Association·Sharon ParmetRichard M Glass
Jan 15, 2003·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·E P WrightA Cull
Mar 5, 2003·Journal of Pain and Symptom Management·Diana J WilkieRudy Gilespie

❮ Previous
Next ❯

Citations

Mar 10, 2006·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·N KearneyP Gray
Jun 1, 2010·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Erik K FrommeMichelle Hribar
Aug 2, 2007·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·James B JonesAlbert W Wu
Jun 23, 2009·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Claire F SnyderUNKNOWN Website for Outpatient QOL Assessment Research Network
Jan 15, 2004·Oncology Nursing Forum·Ann M Schreier, Susan A Williams
Feb 2, 2011·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Donna L BerryRuth McCorkle
Apr 3, 2015·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Seth E WolpinDonna L Berry
Mar 20, 2014·BMJ Supportive & Palliative Care·Matthew J AllsopBridgette M Bewick
Nov 28, 2015·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Julie BalzanoLara Dhingra
Nov 26, 2010·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·Carmen W H ChanDonna L Berry
Feb 16, 2010·Seminars in Oncology Nursing·Eileen Danaher Hacker
Oct 27, 2010·Applied Nursing Research : ANR·Joseph D TarimanKaren Schepp
May 5, 2009·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·F GibsonN Kearney
May 22, 2007·Seminars in Oncology Nursing·Cheryl Lacasse, Susan L Beck
Nov 26, 2015·Patient Education and Counseling·Elissa T BantugUNKNOWN PRO Data Presentation Stakeholder Advisory Board
Mar 22, 2014·Biology of Blood and Marrow Transplantation : Journal of the American Society for Blood and Marrow Transplantation·Samantha B ArtherholtJesse R Fann
Jul 22, 2006·Oncology Nursing Forum·Cynthia CherneckyJennifer Walter
Jun 19, 2007·Oncology Nursing Forum·Mary E Ropka, Geraldine Padilla
May 22, 2007·Seminars in Oncology Nursing·Norissa HoneaSusan L Beck
Aug 9, 2008·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Stein KaasaDagny Faksvåg Haugen
Aug 24, 2011·Qualitative Health Research·Susan S TavernierSusan L Beck
Aug 30, 2017·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·L Y YangR A Olson
Feb 15, 2013·The American Journal of Hospice & Palliative Care·Ferraz Gonçalves
Apr 28, 2004·Clinical Journal of Oncology Nursing·Barbara Owens, Shannon Ruff Dirksen
Apr 20, 2007·Clinical Journal of Oncology Nursing·Sandra A MitchellEllen R Tanner
Sep 24, 2005·Journal of Medical Systems·Min WuChangshan Wu

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.