Concerns of family members of patients receiving palliative sedation therapy

Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer
Tatsuya MoritaJapan Pain, Rehabilitation, Palliative Medicine, and Psycho-Oncology (J-PRPP) Study Group

Abstract

Symptomatic sedation is often required in terminally ill cancer patients and could cause significant distress to their families. The aim of this study was to gather vivid family descriptions about their experiences in palliative sedation therapy. This report is an additional analysis of a multicenter questionnaire survey. We performed content analysis on 48 statements described by 185 bereaved family members of patients who received palliative sedation therapy. Family members reported guilt, helplessness, and physical and emotional exhaustion when patients received palliative sedation therapy. They were concerned about whether sedated patients experienced distress, wished to know that the maximum efforts had been made, wished to prepare for patient death, wished to tell important things to patients before sedation, wished to understand patients' suffering, and wanted medical professionals to treat patients with dignity. To alleviate family distress, clinicians should understand families' emotional distress, ensure that unconscious patients feel no distress, reassure family members that the symptoms are truly refractory despite maximum efforts for symptom relief, give information and coordinate the situation to enable families t...Continue Reading

References

Jan 23, 1999·JAMA : the Journal of the American Medical Association·P A SingerM Kelner
Sep 4, 1999·Palliative Medicine·T MoritaS Chihara
May 20, 2000·Annals of Internal Medicine·K E SteinhauserJ A Tulsky
Oct 21, 2000·Mayo Clinic Proceedings·P Rousseau
Nov 14, 2000·JAMA : the Journal of the American Medical Association·K E SteinhauserJ A Tulsky
Oct 17, 2002·Palliative Medicine·Mike BennettUNKNOWN Association for Palliative Medicine's Science Committee
Dec 31, 2002·Journal of Pain and Symptom Management·Tatsuya MoritaYasuo Shima
May 26, 2004·Journal of Pain and Symptom Management·Tatsuya MoritaYasuo Shima
Jan 14, 2005·Journal of Pain and Symptom Management·Tatsuya MoritaUNKNOWN Japan Pain, Rehabilitation, Palliative Medicine, and Psycho-Oncology Study Group

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Citations

Jul 11, 2006·Wiener medizinische Wochenschrift·Bernadette Hörfarter, Dietmar Weixler
Jan 8, 2010·Journal of Cross-cultural Gerontology·Anne P GlassLusine Nahapetyan
Feb 15, 2007·Journal of Palliative Medicine·Alexander de Graeff, Mervyn Dean
Jun 23, 2009·Annals of Oncology : Official Journal of the European Society for Medical Oncology·N Cherny
Jan 17, 2008·Chest·Cynthia J GriesRuth A Engelberg
Jan 15, 2014·Journal of Palliative Medicine·Siebe J SwartJudith A C Rietjens
Dec 2, 2008·Journal of Pain and Symptom Management·Sebastiano MercadanteAlessandra Casuccio
Jul 29, 2008·Journal of Pain and Symptom Management·Patricia ClaessensBert Broeckaert
Nov 10, 2007·Psycho-oncology·Mitsunori MiyashitaYosuke Uchitomi
Jun 1, 2014·Journal of Pain and Symptom Management·Shirley H BushPeter G Lawlor
Jun 5, 2012·Journal of Pain and Symptom Management·Sophie M BruinsmaAgnes van der Heide
Jun 30, 2009·Journal of Pain and Symptom Management·Silvia van DoorenCarin C D van der Rijt
Mar 7, 2014·Journal of Medical Ethics·Donald G van TolHeleen Weyers
May 26, 2016·Journal of Pain and Symptom Management·Anniek D MasmanDick Tibboel
Aug 9, 2008·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Mitsunori MiyashitaKei Hirai
Oct 28, 2009·Palliative Medicine·Nathan I ChernyUNKNOWN Board of the European Association for Palliative Care
Mar 26, 2011·Journal of Intensive Care Medicine·Irene M Spinello
Oct 19, 2007·Palliative Medicine·Miki NambaKei Hirai
Sep 5, 2015·Palliative Care·Chris O'HaraGary D Ceneviva
Jan 18, 2013·The American Journal of Hospice & Palliative Care·Petra Vayne-Bossert, Gilbert B Zulian

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