Abstract
This study aimed to determine (a) concordance between parents' and children's perceptions of health-related quality of life (HRQoL) for children who sustained a mild traumatic brain injury or a mild non-brain injury or who were uninjured at baseline and at 1, 3, 6, and 12 months postinjury; (b) test-retest reliability of the Pediatric Quality of Life Inventory Generic Core and Cognitive Functioning Scales in the uninjured group; and (c) which, if any, variables predicted parity in child/parent dyad responses. This longitudinal study included 103 child/parent dyads in three groups. Each child and parent completed Pediatric Quality of Life Inventory questionnaires within 24 hours of injury and at months 1, 3, 6, and 12 postinjury. Child/parent HRQoL concordance was generally poor. The variables for age, gender, and study group were not found to be response-parity predictors. Inclusion of child and parent perceptions provides a more comprehensive picture of the child's HRQoL, increasing provider awareness of related health care needs.
References
Aug 6, 1998·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·N C TheunissenJ M Wit
Feb 19, 1999·Medical Care·J W VarniC A Rode
Jul 27, 2001·Medical Care·J W VarniP S Kurtin
Mar 29, 2002·Arthritis and Rheumatism·James W VarniIlona S Szer
Apr 5, 2002·Cancer·James W VarniPaige Dickinson
Nov 18, 2003·Ambulatory Pediatrics : the Official Journal of the Ambulatory Pediatric Association·James W VarniDouglas Skarr
Apr 16, 2004·Journal of Rehabilitation Medicine·Linda J CarrollUNKNOWN WHO Collaborating Centre Task Force on Mild Traumatic Brain Injury
Oct 12, 2004·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·A JokovicG Guyatt
Sep 20, 2005·The Journal of Head Trauma Rehabilitation·Isabelle GagnonRobert Forget
Oct 11, 2005·Archives of Physical Medicine and Rehabilitation·Melissa L McCarthyUNKNOWN CHAT Study Group
Aug 5, 2006·Social Science & Medicine·Wendy J UngarKatherine M Boydell
Mar 14, 2007·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Elise DavisUlrike Ravens-Sieberer
Aug 19, 2007·Behavior Research Methods·Franz FaulAxel Buchner
Nov 16, 2007·Pediatric Physical Therapy : the Official Publication of the Section on Pediatrics of the American Physical Therapy Association·Oluwabunmi OladejiRichard T Lauer
Jun 4, 2008·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Penney UptonChristine Eiser
Dec 1, 2005·Expert Review of Pharmacoeconomics & Outcomes Research·James W VarniMichael Seid
Dec 15, 2010·The Journal of Trauma·Belinda J GabbePeter A Cameron
Aug 9, 2011·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Susan K ParsonsPamela S Hinds
Apr 3, 2012·Archives of Physical Medicine and Rehabilitation·Monique S ArdonWim G Janssen
May 30, 2013·European Journal of Pediatrics·Christine Eiser, James W Varni
Sep 17, 2013·Pediatric Blood & Cancer·Julie A PanepintoJames W Varni
Nov 5, 2013·Brain Injury : [BI]·Pam Pieper, Cynthia Garvan
Citations
Jan 13, 2017·Journal of Neurotrauma·Kelly RussellMichael J Ellis
Jan 20, 2019·Journal of Neurosurgery. Pediatrics·Kelly RussellMichael J Ellis
Sep 25, 2019·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Hugo Câmara-CostaMathilde Chevignard
May 31, 2020·Health and Quality of Life Outcomes·A J L M GeraerdsSuzanne Polinder
Mar 2, 2021·Brain Injury : [BI]·Ruikang Liu, Steven D Hicks