Consent for use of clinical leftover biosample: a survey among Chinese patients and the general public.

PloS One
Yi MaXianMing Kong

Abstract

Storage of leftover biosamples generates rich biobanks for future studies, saving time and money and limiting physical impact to sample donors. To investigate the attitudes of Chinese patients and the general public on providing consent for storage and use of leftover biosamples. Cross-sectional surveys were conducted among randomly selected patients admitted to a Shanghai city hospital (n = 648) and members of the general public (n = 492) from May 2010 to July 2010. Face-to-face interviews collected respondents-report of their willingness to donate residual biosample, trust in medical institutions, motivation for donation, concerns of donated sample use, expectations for research results return, and so on. The response rate was 83.0%. Of the respondents, 89.1% stated that they completely understood or understood most of questions. Willingness to donate residual sample was stated by 64.7%, of which 16.7% desired the option to withdraw their donations anytime afterwards. Only 42.3% of respondents stated they "trust" or "strongly trust" medical institutions, the attitude of trusting or strongly trusting medical institutions were significantly associated with willingness to donate in the general public group.(p<0.05) The overall a...Continue Reading

References

May 16, 2002·Journal of the National Cancer Institute·Thomas MaloneBruce Giantonio
Jul 2, 2002·Archives of Internal Medicine·Dave Wendler, Ezekiel Emanuel
May 26, 2004·Trends in Biotechnology·Richard TuttonKlaus Hoeyer
Mar 30, 2005·Archives of Internal Medicine·Donna T ChenDavid Wendler
Mar 3, 2006·The Lancet Oncology·Mats G HanssonGert Helgesson
Mar 4, 2006·BMJ : British Medical Journal·David Wendler
Mar 3, 2007·The Lancet Oncology·Jean McHaleKathy Pritchard-Jones
Mar 18, 2008·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Gail HendersonGiselle Corbie-Smith
Apr 2, 2008·EMBO Reports·Elena SalvaterraPaolo Rebulla
May 3, 2008·The Lancet Oncology·Michael Jefford, Rosemary Moore
Nov 27, 2008·British Journal of Cancer·M G Hansson
May 28, 2009·European Journal of Human Genetics : EJHG·Joanna Stjernschantz ForsbergStefan Eriksson
Jun 6, 2009·BJU International·Patricia E FitzpatrickJohn D Sheehan
Jun 25, 2009·Health Economics·Adam WagstaffWilliam C Hsiao
Oct 29, 2009·British Journal of Cancer·E VermeulenF E van Leeuwen
Nov 3, 2009·American Journal of Human Genetics·David J KaufmanKathy L Hudson
Nov 13, 2009·Scandinavian Journal of Public Health·Aaro TupaselaElina Hemminki
Jul 16, 2011·Human Genetics·Michael Kiehntopf, Michael Krawczak
Mar 19, 2014·The Annals of Thoracic Surgery·Shubha DathatriTodd K Rosengart

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Citations

Nov 2, 2014·BMC Medical Ethics·Zhaochen WangXiaomei Zhai
May 20, 2014·Biopreservation and Biobanking·Haidan ChenJohannes Starkbaum
Jan 23, 2016·Science and Engineering Ethics·Vilius DranseikaMarcin Waligora
Sep 12, 2014·Cancer·Rafeek A YusufFunda Meric-Bernstam
Apr 1, 2015·Biopreservation and Biobanking·Altovise T EwingDavid Kaufman
Feb 17, 2015·Biopreservation and Biobanking·Rongxing GanYan Xiong
Feb 26, 2016·Annual Review of Genomics and Human Genetics·Paulina Tindana, Jantina de Vries
Nov 8, 2017·CNS Neuroscience & Therapeutics·Ying ZhangYang-Tai Guan
Mar 6, 2015·Journal of Empirical Research on Human Research Ethics : JERHRE·Blake J RoesslerLisa Connally
Jun 3, 2017·The Journals of Gerontology. Series A, Biological Sciences and Medical Sciences·Melissa A SimonXinQi Dong
Oct 12, 2017·Journal of Experimental & Clinical Cancer Research : CR·Pei-Jie ZhouWei-Qiang Gao
Jun 27, 2019·International Journal of Environmental Research and Public Health·Jan Domaradzki, Jakub Pawlikowski
Jul 18, 2021·Biopreservation and Biobanking·Limin GaoHong Ren
Oct 30, 2021·Journal of Medical Internet Research·Giovanna Nunes VilazaJakob Eyvind Bardram

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Software Mentioned

Statistical Package for the Social Sciences
Systat
Sigmaplot

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