COPD transitions in health and self-management: service users' experiences from everyday life

International Journal of Chronic Obstructive Pulmonary Disease
Anne-Grethe HaldingEllen Karine Grov

Abstract

To explore how persons living with COPD experience transitions related to health, self-management, and follow-up from the healthcare services. This study is part of a participatory research project. Six males and five females living with COPD, with a COPD assessment test score of 21-29, participated; all the participants were living at home. Data were collected in qualitative research interviews and analyzed using qualitative content analysis highlighting the participants' experiences. The findings showed two main themes: "The struggle to keep going" and "The need for continuity and competent facilitation". The participants reported complex health transitions, with changes in roles and function, demanding exacerbations and critical events, and challenges with learning needed self-management. They expressed a great need for and had great benefit from, education, rehabilitation, and follow-up in their management of everyday life. Not all received offers in line with current guidelines. In-depth knowledge of patients' experienced COPD transitions offers clinicians guidance for the timing and quality of follow-up services. Life with COPD entails challenging transitions in health and self-management. Good rehabilitation and follow-u...Continue Reading

Citations

Jan 21, 2021·Disability and Rehabilitation·Rina Juel KaptainAnn-Helen Patomella
Jan 16, 2021·International Journal of Chronic Obstructive Pulmonary Disease·Rina Juel KaptainAnders Kottorp
Nov 4, 2021·Clinical Nursing Research·Jee Young Joo, Megan F Liu

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