Coping with Cognitive Impairment in People with Parkinson's Disease and Their Carers: A Qualitative Study.

Parkinson's Disease
R A LawsonKatie R Brittain

Abstract

Cognitive impairment is common in Parkinson's disease (PD). However, the psychosocial impact of living and coping with PD and cognitive impairment in people with PD and their carers have not been explored. This paper draws on a qualitative study that explores the subjective impact of cognitive impairment on people with PD and their carers. Thirty-six one-to-one interviews were completed; people with PD were from three groups: normal cognition, mild cognitive impairment, and dementia. Data collection and analysis were iterative, and verbatim transcripts were analysed using thematic analysis. Themes were interpreted in consultation with coping and adaptation theory. The analysis revealed four main themes: threats to identity and role, predeath grief and feelings of loss in carers, success and challenges to coping in people with PD, and problem-focused coping and finding meaning in caring. Our data highlight how cognitive impairment can threaten an individual's self-perception; the ostensible effects of cognitive impairment depended on the impact individual's perceived cognitive impairment had on their daily lives. For carers, cognitive impairment had a greater emotional impact than the physical symptoms of PD. The discussion that...Continue Reading

References

Mar 1, 1992·Journal of Neurology, Neurosurgery, and Psychiatry·A J HughesA J Lees
Sep 1, 1994·Journal of Advanced Nursing·J WuestP N Stern
Jun 24, 2004·International Journal of Geriatric Psychiatry·Joni PatonGill Livingston
Jul 9, 2004·International Journal of Nursing Studies·A M B Birgersson, A-K Edberg
Mar 31, 2005·Neuropsychology Review·Janna M Glozman
Jul 6, 2006·Journal of Neurology, Neurosurgery, and Psychiatry·D AarslandJ L Cummings
Aug 26, 2006·Annual Review of Psychology·Annette L StantonHoward Tennen
Jun 2, 2007·Movement Disorders : Official Journal of the Movement Disorder Society·Murat EmreBruno Dubois
Sep 18, 2007·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Allison TongJonathan Craig
Mar 1, 2008·Movement Disorders : Official Journal of the Movement Disorder Society·Mariese A HelyJohn G L Morris
Jun 6, 2008·Social Science & Medicine·Caroline WilliamsonCraig D Murray
Jul 22, 2008·Lancet·Denise de RidderHenriët van Middendorp
Sep 2, 2008·Movement Disorders : Official Journal of the Movement Disorder Society·Haruko TanjiLisa M Shulman
Mar 17, 2010·International Psychogeriatrics·Helen D DaviesAntonette M Zeiss
Feb 2, 2011·International Psychogeriatrics·Louise RobinsonJill Manthorpe
Jun 22, 2011·Patient Related Outcome Measures·Horacio Chiong-RiveroBarbara G Vickrey
Jan 26, 2012·Movement Disorders : Official Journal of the Movement Disorder Society·Irene LitvanMurat Emre
May 23, 2012·International Psychogeriatrics·Catherine S HurtUNKNOWN PROMS-PD Study Group
Oct 24, 2012·Parkinsonism & Related Disorders·J H CarterJ Malcom
Nov 23, 2012·Journal of Geriatric Psychiatry and Neurology·Iracema LeroiVijay Harbishettar
Apr 30, 2013·International Journal of Geriatric Psychiatry·Aleksandra KudlickaJohn V Hindle
Sep 17, 2013·Parkinsonism & Related Disorders·John V HindleLinda Clare
Oct 15, 2013·British Journal of Health Psychology·Rona Moss-Morris
Dec 24, 2013·Neurology·Alison J YarnallUNKNOWN ICICLE-PD Study Group
Sep 13, 2014·Acta Neurologica Scandinavica·D Santos-García, R de la Fuente-Fernández
Apr 21, 2016·Parkinsonism & Related Disorders·Rachael A LawsonUNKNOWN ICICLE-PD study group
Dec 8, 2016·International Journal of Geriatric Psychiatry·R A LawsonUNKNOWN ICICLE-PD study group

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Scandinavian Journal of Occupational Therapy
Mohammad Nazzal, Hanan Khalil
The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses
Yu Tai ChenJiann Horng Yeh
© 2022 Meta ULC. All rights reserved